Twelve years ago I was diagnosed with levator ani syndrome with excruciating pain. After seeing 19 doctors over 2 years, and trying botox injections, caudal epidural, acupuncture treatments, cold laser treatment, electric galvanic stimulation, cortisone shots, many kinds of pain medication and nerve pain medication, specialized physical therapy, & 9 nerve blocks, not much helped. I learned to live with it over the next 10 years by taking gabapentin, nortriptyline, and trazadone at night for pain and sleep, and in the daytime sitting on a cushion with a hole in the back (from Relax the Back), as my job was sitting all day. I took Tramadol in the morning, but by mid-afternoon, the pain returned. The nerve medications help considerably, but I couldn't take them in the daytime, as they cause me to have blurred vision, brain fog, and dizziness.
However, about 3 weeks ago, the excruciating pain that began twelve years ago has returned (and nothing helps), and I was in bed with the heating pad for over a week until I could get in to see my colon doctor (heating pad on high helps to take your mind off the pain, although it does sometimes cause blisters, a minor side effect). He prescribed Baclofen, which helps with the pain, and since I'm retired now, I can take it during the day, even though it gives me the blurred vision, brain fog, and dizziness. ANYTHING is better than the excruciating pain 24/7.
My doctor referred me to a physical therapist, who studied under the PT I had 10 years ago. She specializes in the pelvic floor/levator pain (internal physical therapy, TENS, dry needle therapy, wand, and exercises). I've had 3 sessions with her, and I'm also trying to get in to see a doctor (who my physical therapist recommended) specializing in pelvic pain/pelvic dysfunction. I just want to know if there are other things anyone has tried that I haven't already tried. I can't go anywhere that involves sitting, and I can't live the rest of my life with the pain and the side effects of the nerve medications.
TF from TX; F71