is there any support networks in the uk for people with tarlov cysts x
support: is there any support networks... - Pelvic Pain Suppo...
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Michellelouise
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2 Replies
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Hi, I have Tarlov cysts too. My spine is painful always, I have three of them, i am not sure if there is any support, here in the UK.
Suzie
Have just Googled - there are several:
Arthritis Research UK now known as Versus Arthritis gives this helpline number -
0800 5200 520
Tarlov Cyst Disease UK -
Tarlovcyst.co.uk - this website also mentions links to other support including :
Tarlov Cyst UK Support Group
Tarlov Cyst Disease Foundation
Neuro Talk Support Group
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