asking for advise

[pizon]

hi everyone I hope there is someone out there that can help....I have symptoms that I don't read much about on this site and am wondering if anyone else who has been diagnosed with PN feels as if there is a ball or an object in there vagina when I sit I don't get the pain that a lot of people complain about as far as the clitoral pain ect my main pain is this feeling of a ball and when I sit for a long time it feels as if it is pushing up on my bladder or sometimes my hip....this all started after prolapse bladder and uteral repair were done is there anyone else out there that feels this?

[Gardeningbuff]

I have that sometimes. Ive had prolapse repairs. Im 63 so no oestrogen any more. I think in my case its probably another small prolapse. Vagifem has helped me a bit.

[pizon in reply to Gardeningbuff]

Thank you...I just had surgery to remove some eroded stitches ( 4 weeks ago) there is no prolapse Just feels like that they are saying it is the p/n and sciatica and lingual nerve all I know is that when I sit it feels like a ball is pushing up on my bladder sometimes my hip/overy pain I am at my wits end

[Gardeningbuff in reply to pizon]

I can imagine. Sounds very painful.

[Luvpups]

Hi there!!!! I have had that same foreign object feeling....mine felt like a ping pong ball!!! I felt vaginal swelling but of course it was perfectly normal!!!!I was diagnosed with PN 6 yrs ago...

I went to pelvic pain specialist Dr Hibner in Az. They specialize specifically in nerve pain. They can help you!

Please ask me any questions you have!!!

I take meds to manage my symptoms and life style changes... I can usually sit for awhile without pain depending on the surface!

Dawn

[pizon in reply to Luvpups]

Thank you for your reply...I just had some stiches removed from a prolapse repair surgery and am waiting to see if it will help the became eroded I saw Dr. Richard Marvel in MD. I have tried many different meds with no luck I react to all med I am working with an herbalist and have had some success I am only 1 month out and they said it could take up to 6 months to know for sure...have you had a nerve block done? Again thank you there for a while I thought I may have been mis diognst again

[Julieamb in reply to pizon]

Hi, I have pn and had two nerve blocks and then had a radio frequency ablation. I have had it done twice and am scheduled for my third one next Wednesday. They help me for about eight months and then the pain starts to come back, some people get longer. It has been such a blessing to have this procedure. It has really helped me. I go to a pain doctor at the Cleveland Clinic, he is amazing.

[Luvpups in reply to Julieamb]

Oh wow!!!! You are so lucky!!!!!

I tried this procedure and it did not work in fact it flared me for about 2 weeks and when the nerve started to regenerate it was screaming!!! Yikes!!! I was diagnosed about 3 years ago I’ve been having symptoms for 6 years!!! My symptoms came on slowly!!!!

I find it so interesting and confusing how all of us have such different procedures that work for each of us individually!!!