Newly diagnosed pelvic congestion syndrome

[Sarah250]

I’ve recently been diagnosed with pelvic congestion syndrome after 10 years of suffering with pelvic pain and heavy periods. Initially was told it was endometriosis so I tried numerous contraceptive pills and mirena to help with symptoms but none have had any effect. I had the mirena removed in September and it now having what I assume is my first period post mirena. TMI !! It’s soo heavy that I’m soaking through a maternity pad every hour and it’s so painful and have been for the last two days. Doctor has prescribed me tranexamic acid and mefanamic acid for the pain and bleeding but I still have to take codeine on top ! Can anyone enlighten me on what their symptoms are with this horrible condition and is it going to be like this every month !?

TIA