hi all, hope you are all having as good a day as you can have under the circumstances of living with pelvic pain.
i just wanted to update you as to what is happening to me after my disastrous appointment with my now ex pain dr last friday.
i am not one to let the grass grow under my feet, so i contacted professor robert in nantes, who, most of you will know offered me pudendal decompression surgery last september, i was supposed to have it jan this year but i had to cancel due to lack of funds, well anyway, i have contacted him again and i just awaiting a date to proceed with the surgery.
because the nhs wont fund it , i have sold my jewellery, and am also selling everything i can find to fund it (dont worry i still have my bed and a tele).
as you know i was on the radio a few weeks ago about pne and i will be contacting them again about my surgery and hopefully they will follow my journey from now on and again it will highlight our struggle with this hideous condition.
i will keep you all updated with any info i get and also i think it will help many of you who are considering going to nantes for a diagnosis or surgery