Hello, I have been reading everyone's posts and it has made me feel that I am not alone. It makes me very sad. April 2015 It started with a ache in my right side of vagina, vagina felt puffy/swollen. Then my right groin also started to hurt. It would hurt standing, walking, kneeling down, laying down. It was ruining my life. Doctors gave me pain tablets they thought it was muscle pain. I took all the tablets, then felt better a few months later it came back in my right side vagina/groin, numb leg. Doctors kept telling me it will go away.
Then January 2016 it wasn't just my right side, but left too. Doctors referred me for physio, they said 'I THINK' it's a torn ligament. Anyway physio never worked. They sent me for a groin scan, vagina scan (belly), all came back fine. Apart from in groin scan it showed lymphnodes were swollen, but they said it was normal.
April 2016 I started to get sharp pains in both side hips.
Doctors referred me to see a orthopedic, they sent me for hip x Ray, mri arthrogram, all came back fine.
I am 25 years old, and it is totally ruining my life. The doctors don't want to know. They all look at me like I'm lieing.
Orthopedics are sending me for lumbar mri, and asking doctors to sort out me seeing someone about pain relief and seeing a gynie about swollen vagina.
I would be greatful if people could share their experiences that are the same as mine???