Daily severe Pain, Please Help. - Pelvic Pain Suppo...

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Daily severe Pain, Please Help.

Gemini71
Gemini71

Hi All, I'm new here,so I will keep it as short as possible. A bit about myself.

12-13yrs ago I began with a DISCOMFORT in my Tum,after I should think every test you can have,Gall Bladder removed,no end of Gastrologist,I was diagnosed with IBS. So next step is colonoscopy,Diets,and I've been from one end of the country to the other. Also started with constipation to diaharea .

Right fast forward to about 3-4yrs ago,the discomfort became daily pain,as times gone on the pain gets more severe. I go the toilet after every time I eat,and with the pain getting stronger each time,by teatime the pain is becoming unbearable . I have been to A&E a couple of times but,after a long uncomfortable wait it's morphine injection and home,next day back to square one. The pain I get is mainly when I sit,and if I put my legs up its right down in my pelvic area,goes in between my legs,through to my vagina,and under into my anus. 6wks ago I had an MRI scan to see if it was my Prudential nerve,but I don't have the result yet.

I'm just asking anyone with the same type of problem,what can I do for relief.

I'm at my wits end its never ending day in day out totally ruined mine and my

Hubby's life. Any advise would be so appreciated.

18 Replies
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Ask your GP for an urgent referral to see your nearest pain management team. Let mecexplain. I was admitted to hospital with very, very bad left abdominal pain which was getting much worse as time passed. I too had every test. Two things then happened. 1. The pain management team based at the hospital where i was came to see me. One member of the team was the pain nurse specialist and the second was an anaesthetist specialising in pain. Both said that like you the pain originated from my back and came through to my front, down to my groin and out to my pelvis. This was made worse because i use every night a jejunal feeding tube with a pump and the faster the flow of feed through the feeding tube the worse the pain became (this was witnessed how bad it was). 2. During whilst having a Flexible Sigmoidoscopy a polyp was found which looked unhealthy. I had to wait for a Colonoscopy a few days later. During the Colonoscopy the previously found polyp had grown a few more mms in size and to add to that a further polyp equally unhealthy looking was found. Both were removed and sent for pathology which as it turned out to be tubullar sessile polyps which had areas of pre-cancerous growths! Now i have to have regulat Colonoscopies to monitor me for Bowel Cancer.

Anyway i digress. The point is this, my pain diminished and almost completely dissapeared once these two polyps were removed! Plus i am on regular pain medication to control what pain that remains. That is why i advise that you get a referral to see a pain management team ok?

Gemini71
Gemini71 in reply to 2Chrissie4

Hi Chrissie,thanks for your reply. I have been to see pain management,which was a waste of time. During my colonoscopy they found one polyp ,which they removed,but was of no problem. When I had the colonoscopy the pain was making me scream,even though I supposedly had a sedative. When I talk to anyone else who's had one,they tell me no problem,which makes me wonder why,but no ones got any answers.

About 6yrs ago I was given Pregablin for the pain,but being Nieve at the time, I'm still taking them even though they don't stop the pain,now if I try to get off them I have big problems,I was also given Mirtazapine,same story they don't do nothing but once again I try getting off them and they cause me problems I never had. My GP at the time kept saying to me stay with them give them a chance,now I'm stuck with to drugs I don't need.

I'm totally at a loss,because I've tried practically all the pain meds possible,but the only way I'm free from pain is when I'm practically out of it.

Well I can't live life like that. But thank you it's kind of you to try and help.

yesco
yesco in reply to Gemini71

Hello,

Just reading thru , I really feel for you.. Had some pain which was similar but not as excruciating has you have described. Had Polyp removed then later found out it was polycystic ovaries ... I went natural, taking lots antioxidant teas ,capsules and drinks.. The pain vanished.. Including chronic years of severe back ache.. I can send you links if you want to try natural... Take care of yourself.. Cheers

Shazk42
Shazk42 in reply to Gemini71

Hi Gemini71, I have been given the same medications but stopped taking them as it was making no difference. I'm so glad I did after reading what the medication has done to you. I'm on one medication to another. My doctors turned round and said what do you expect from pelvic specialist if I refer you.

No sympathy what so ever

Could be pudendal neuralgia only an MRN might see this. Could be genitofemoral nerve as well. Google Dr Lee Dellon and read his free chapter online about pelvic pain. I had entrapment of the ilioinguinal iliohypogastric and genitofemoral nerves no test showed.

Gemini71
Gemini71 in reply to Pepper1977

So how did you find out your problem Pepper. I've just had a read of the interview Dr Lee Dellon gave and it really sounds encourageing . I will read more. Have you solved your pain? Boy what I'd give just to be pain free or at least a bit more bearable. Thank you for that anyway.

Pepper1977
Pepper1977 in reply to Gemini71

Dr Dellon diagnosed me upon examination. I saw 20 dr prior even had hysterectomy and the Dr took my left ovary which were healthy. I had nerve blocks that confirmed the nerves were the cause of the pain, proceeded with surgery with a colleague of Dr dellon, the Dr found two small muscle tears the nerves were stuck in the tears and touching the skin underneath. So my pelvis was on fire going into groin and thigh area.

Hi, I think I have some of the same issues, how did you like Dr. Dellon. I've been to many doctors myself.

Gary

He's very straightforward, I liked him. No wishy washy stuff

Thanks, I don't know if I should get a MRN is this a joke or not.

A Dr. Oskar Aszmann said for me to get a tessla MRI.

But he's is really far from me.

Johns Hopkins has a 3T I believe. I had both MRI and MRN, showed nothing. Nerve blocks were the best diagnostic tool for me personally. Dr Eric Williams in Baltimore is very good as well. Sounds like you need a nerve surgeon.

Shazk42
Shazk42 in reply to Pepper1977

I will look into that, just alittle bit of relief would be wonderful. Thanks for info

I believe I might, I found a really good Pt trainer a few hours away, here in Ohio it might be the worst place to be with these symptoms..to say the lest. My trainer told me she will do 3 sessions of Pt and then order nerve blocks. At the Cleveland Clinic. Hope your symptoms is better?

Same pain but mostly pain comes standing and walking - I have to curled my back to get a support to stand up and walk slow..A & E have diagnosis of liver deranged which MRCP all clear, Endoscopy came as I have multiple gastric ulcers..treatment with antibiotic which I felt that most of the pain started in my lower tummy as I has Mirena Coil (taken off now I can slow walk)..Legs, back and hips quite discomfort when moving. Prefers to lie down so no much pain only uncomfortable tingling pain in my tummy. Bloodtest came back all clear!

Hi All,I'd just like to say thank you for your replies,they have been most informative.

But I'm from the UK and the only MRN scanner in the UK is in London,which if nessasary I could get there,but I do believe you have to pay,which is out of the question.

It seems to me like if you have any type of nerve problem it can only be picked up on a MRN scan.

So where does that leave me and millions of other people that suffer with a nerve pain,unless you can pay?

So I just feel this is so disalutioning ,and hard to deal with.

Hi, I was unable to work just a couple of months ago due to chronic pelvic pain and a few weeks ago I started back at work just about pain free. I got better quite quickly after finding the Curable app and reading Dr Sarno’s book The MindBody Prescription. I highly recommend! The painkiller/surgery route is not needed!

YOU POOR THING OMG! NO ONE KNOWS HOW BAD THIS PAIN IS ! AFTER BOWEL MOVEMENT IT TAKES ABOUT 5 MINUTES AND THEN IT STARTS,,,,, OMG ICE PILLS ANYTHING BUT IT TAKES AN HOUR TO EVEN SUBSIDE A LITTLE! I VE HAD EVERYTHING AND CAN;T FACE LIVING MY LIFE LIKE THIS,,,,, I ALSO HAVE TO GET OUT OF THIS HOUSE!!!! SHE IS SO COLD AND NON UNDERSTANDING NO COMPASSION AT ALL,,,,MEANWHILE I;'M CRYING FROM DEPRESSION AND WANTING MY LIFE BACK,,,,, I HAVE NO IDEA WHATS LEFT THERE HAS TO BE SOMETHING,,,,,, GOD BLESS FOR A MIRACLE FOR ALL OF US!

Did you get the problem sorted in the end? It sounds really awful. My thoughts are with you all.

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