Spinal decompression and Tarlov cysts - Pelvic Pain Suppo...

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Spinal decompression and Tarlov cysts

lonely_pelvic profile image
12 Replies

Anyone had experience of spinal decompression around Tarlov cysts to remove pelvic floor pain? Or even has anyone been told they have tarlov cysts?

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lonely_pelvic profile image
lonely_pelvic
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12 Replies
Pepper1977 profile image
Pepper1977

Yes I have one and will be getting it investigated soon by Dr Long out of Baltimore. The closed Facebook group pudendal hope people have these cysts in the group

lonely_pelvic profile image
lonely_pelvic in reply to Pepper1977

Thanks. I will check on the Pudendal Hope site,not much visible here in the UK

WFanburg profile image
WFanburg in reply to Pepper1977

What procedure is Dr. Long going to do, and what has been his success thus far for pelvic pain etc?

Thanks.

DrF

Pepper1977 profile image
Pepper1977 in reply to WFanburg

Dr Long doesn't do surgery anymore but he does injections and will go over your MRI. There is a Dr in Texas who performs surgeries. Dr Long has been in practice for 40 years

Rosepetal60 profile image
Rosepetal60

I read of another person on the pain support site, who went to USA to have a a Tarlov cyst removed. ( not as I understand it done in the UK).

lonely_pelvic profile image
lonely_pelvic in reply to Rosepetal60

The work would be done on the spine,I have a number of cysts and it is not proposed to remove them

jacquieb profile image
jacquiebVolunteer

Hi, I have quite a lot of knowledge about Tarlov Cysts, I also suffer from pudendal neuralgia pain which has been going on for 11 years. I was once in contact with a Dr Feinenberg in the USA. Also saw a Dr Adrian Casey here in the UK. Decided against surgery for lots of reasons. Whatever surgery you have, try and keep away from the base of your spine. jx

Gabriellina profile image
Gabriellina in reply to jacquieb

Hi. I am Gabriella from Rome, Italy.

I have a 2 cm Tarlov Cyst in my sacrum and Dr Figenbaum wants to do surgery.

In Italy I cannot find surgeons that use his technique but only some kind of nerve decompression...

So I am confused... but I can't talke my chronic pelvic pain any more..

I would appreciate any kind of information you can advice me regarding this nerve and Tarlov surgeries.

Thanks Gabriella

lonely_pelvic profile image
lonely_pelvic

Thank you.I have strong reservations about surgery but wanted to see if anyone had success w this op!

willemine profile image
willemine

I know someone how had a surgery last week they emptyed the cysts by her lower spine and folded them up so they couldn t fill anymore. She couldn t sit i don t know the outcome yet.

willemine profile image
willemine

She is active on " my chronic pain" het nick name is Bjean

Karen0248 profile image
Karen0248

I have many Tarlovs cysts also... not sure what my options are to shrink them, hopefully we can get some answers ... they may be a problem in my PN diagnosis.. I have mod to severe pain all the time x 2.5 yrs. had back surgery 2.5 yrs ago for spinal stenosis

thank you for posting this

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