Who Would Like To Meet Up?: This post... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,396 members5,652 posts

Who Would Like To Meet Up?

StevenM profile image
14 Replies

This post is purely to find out whether there are enough people on our forum suffering from pelvic and related pain who would like to meet up, in the UK, a little later this year. This is just a thought in its embryonic stage at present, but if there is enough interest we could arrange a meet up, one weekend later in the year. Points to consider at this stage would include:

a) Where to meet. This forum appears to have sufferers based all over the UK so based upon geographical interest, should it be in the centre of the UK, north or south?

b) An agenda of topics to discuss - these need not be of a technical nature but would include areas of common interest.

c) Whether to invite a guest speaker and if so, whom?

d) An open forum at the end for discussion, questions and answers, ideas and support.

Could I please ask that if anybody besides myself thinks this is a good idea, please register your interest below. I will monitor replies coming in over the next few weeks and if we can muster a sensible minimum number of interested parties, we can then all put our heads together to make this happen.

Thank you.

StevenM

Written by
StevenM profile image
StevenM
To view profiles and participate in discussions please or .
14 Replies
paulyne profile image
paulyne

I think it's a great idea according to where it is of course. I live in Bromley Kent. If meeting up is difficult could a webinar be arranged?

StevenM profile image
StevenM in reply to paulyne

Thanks Paulyne. I am in Essex....we will monitor further replies and your suggestion of a Webinar is very good if the logistics prove to be a stumbling block.

Great idea. I'm in the Midlands. Maybe we should invite Judy B? She has so much knowledge on this subject.

StevenM profile image
StevenM

Thanks for your reply. Yes, noted.....we will see how the numbers stack up and arrange something, so long as it is viable.

Tboag profile image
Tboag

I'm in Essex, Southend, I would like to meet up.

Am also in Southend.

66crusader profile image
66crusader

Yes great idea......Northamptonshire.

donna profile image
donna

I'm in London . I think it's a good idea ..

have you arranged a day get together before? I have been to a few info / connect days with speakers and other things going on ..( lupus ,and thyroid uk day and endo ) I have learnt a lot from talks .. I'd say try not to pack to much in! I think the meeting up with people in the same boat is beneficial , and is not always given top billing ! Lunch break if your lucky! Keep me informed! Thank you x

StevenM profile image
StevenM

Thank you for all replies so far, all sounds encouraging; we will wait a couple of weeks or so and see if there is further interest and then we can formulate a plan of action. No date (or venue) decided upon so far, it will be voxpop on both counts.

Many thanks for everybody's interest so far - truly appreciated.

StevenM

if it helps anyone, there are a lot of meetings for vulval pain held in London ...I go to them sometimes.

google London VPSG . the meetings are held in St Cyprian's church crypt. We cover any kind of pelvic pain on meetintgs, but mostly it's vulvodynia, pn and lichen sclerosus

Rosepetal60 profile image
Rosepetal60

Thank you for posting this. I am interested, I am from Notinghamshire but can drive to Northampton ( noting many Southen peeps interested) and a bit further south ( and north) also. Such as anywhere involving A1 all good

blackmonday profile image
blackmonday

Hi, I might be able to attend. I live in Hull.

lollymay profile image
lollymay

hi, id deffo be interested. im in hertfordshire.

Luckylee profile image
Luckylee

I am interested I am in manchester. Can travel by train as I don't drive anymore..

You may also like...

I wish physicians would come to this site and read and truly listen to our pleas for help

We are left to our own diagnoses and research for help with our pain and suffering. I have seen so...

Does anyone know any doctors who specialise in managing adhesions?

but will not operate if that's not the case and would do as they did this time, which is just boost...

Flare ups

and carry on working. Does any one have any ideas, any would be greatly appreciated. Thanks, S x

Bad news for the nerve block I just went for and I feel like an idiot. Like I let you all down😔

truly disabled. This is the reason. Our pain receptors are in our brain so just adding a pain...

Diagnosed with prolapse but symptoms don't sound like other people's..

lower vagina.. I put this down to not producing enough lubrication and had my pill changed but...