Pain relief: I have had nerve pain for... - Pelvic Pain Suppo...

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Pain relief

Lin93 profile image
17 Replies

I have had nerve pain for 18 months now.I currently take 25 mg of amitripylin at night and 100mg of pregablin 3 times a day.Ive also been taking magnesium supplements. I have tried increasing the amitripylin but it makes me so constipated. I take Senna every night but it dosnt help. Does anyone know of a different medication I could take which dosnt have this side effect?

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Lin93 profile image
Lin93
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17 Replies
Alyssa5 profile image
Alyssa5

What is the name of your condition (nerve pain)?

jacquieb profile image
jacquiebVolunteer

Lots of fruit and veggies help, esp carrots. Senna is ok but on occasions take a proper laxative to clear you out.

juliahall profile image
juliahall

I take Pregabalin and have the same problem. My GP gives me Laxido and that works fine for me, sometimes I only need one powder but I can have three a day if I need them. You can buy them, relatively cheaply, but getting them on prescription is a big help; living in Scotland prescriptions are free thank goodness.

Lin93 profile image
Lin93

I have pudendal neuralgia, I drink plenty of water & eat fruit every day but still constipated.i tried a laxative which cleared me out and I felt much better for a day or two then the whole cycle starts again.i also found I had a lot of stomach cramps so have avoided them since.

I've just been to my doctor and asked if I can try baclofen,she was reluctant but did give me a priscriptions to try for a month and see how I get on. I have fibre gel drinks on prescription too.

I wish our priscriptions were free it's costing me over £24 a month for 3 prescriptions.luckily the fibre gel priscriptions has 4 boxes on so lasts me 4 months but that's on top of the other 3.

Marion62 profile image
Marion62 in reply to Lin93

Have you thought of buying a pre paid prescription card - valid for 3 months (around £29) or a year (around £104 ) for all your prescription charges.

If you decide to, make sure you get a receipt from the pharmacy for any prescriptions you need after you have ordered the card and before it arrives - and you can then claim this money back.

Marion

Lin93 profile image
Lin93 in reply to Marion62

Thank you so much, I've never heard of this before! I can't believe the doctor hasn't told me! I've just applied for one online.

Lin x

Marion62 profile image
Marion62 in reply to Lin93

Hi Lin

Glad you have applied for one. I too was not told about it - neither the pharmacist nor my GP - I spent a fortune one year - even when my prescription was for 4 items in one week - no one told me it would be cheaper to buy a card. I have not seen seen a poster in the local chemists or surgery either.

I actually saw it advertised in the waiting area of the hospital pharmacy - and it saved me loads.

Take care

Marion

in reply to Lin93

Has the baclofen helped at all? Thinking about asking my gp about it. What dose do you take? Thanks. Hope you're keeping ok.

Lin93 profile image
Lin93 in reply to

Hi sue, difficult to say really as I have good days and bad.i think it's eased the pulsing sensation I get in my pelvis which I notice at night mainly when I'm lay in bed.im only on 20 mg a day. I'm seeing my doctor tomorrow and I'm wondering if I need to increase the dose. I'm having terrible time with constipation at the moment and don't know if they're making it worse.

Hope you had a good Christmas and are feeling well. X

in reply to Lin93

Well I hope it does help in the long run. I will ask my gp his opinion. Take care and keep in touch. X

PPSN_JudyB profile image
PPSN_JudyBPelvic Pain Support Netwo

Sodium picosulphate worked best for me, it is gentle and gets things working naturally so generally isn't needed long term. Senna put me in A&E with bowel spasms !

katie72 profile image
katie72

Try liquorice! It's a natural laxative. Xx

katie72 profile image
katie72

Try liquorice! It's a natural laxative. Xx

rozamond profile image
rozamond

have pudendal neuropathy for over a year after removal of hemroids. c0nstant pain in rectum take oxcicodone 4 times a day and 25 mil amatripiline once a day very littlr relief. have had 2 nerve blocks and radio frequency procedure nothing worked next week I am having a shot in the coxick bone I am praying even for a little reief in the beginning the amitripiline gave a little relief no w nothing

Lin93 profile image
Lin93 in reply to rozamond

Sorry to hear your suffering. Have you tried increasing the dose of amitripylin ? I think your body gets used to it after time. I was advised against a nerve block.

I also find having a soak in the bath gives me relief for a while. Good luck with your shot,I hope it works for you.

Take care Lin x

StevenM profile image
StevenM in reply to rozamond

Hello Rozamond, Can I ask what daily dosage of oxycodone you are taking, how long you have been on it and if your doctor is allowing you to stay on it long term as I have heard conflicting reports about taking it long term, although I have been taking it long term myself under the supervision of my GP.

Raybellene profile image
Raybellene

I use lactulose twice a day, no side effects and works well.

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