Ive had these symptoms...
1. Pelvic floor pain
2. Orgasm, sexual pain, sometime difficulty getting erection, unless lying on my back.
3. Widespread tailbone pain
4. Perineum pain
Had about 4 surgeries for this, 0 pain increase, 0 pain decrease. The other day I finally had a ganglion of impar block and it helped about 85%, for hours I was working out years of muscles cramps, in my back, in my pelvis, in my legs, and in my neck.
The Doctor I saw, a Dr North in NC, said the next step would be burning the nerves with phenol I believe he said, but Im really do not want to go the burning nerve direction. When I had the block, the pain improved 85% but I still had some sexual pain and difficulty getting an erection while standing.
Burning the nerves would be equal to making the blocks permanent, is what he told me. Yikes...
When I asked Dr North, what caused this pain, he said sometimes the ganglion just get irritated and it doesnt stop...but I feel fairly certain that there is some entrapment, especially since it is worse on the left side.
What are my other options, aside of nerve burning?