Has anyone else had pudendal nerve decompression surgery?

[sskn]

Hello, while I have only been on this support network for a short period of time, it is a relief to see that I am not alone in this battle. I have read of several individuals who have seen positive results pudendal nerve decompression surgery (pasha, catfish, fionaKim, and spiritgirl142). Are there any other individuals who had this surgery and got better or are seeing positive gains? Would anyone care to share their experiences, as I will probably be scheduling it soon myself.

[JudyRentz]

I'm heading to Minneapolis MN for surgery from Stanley Antolak.Not very informed but trusting him,since he has done 7000! IKNOW its difficult and not 100percent,but, the alternative is to constantly drugged on narcotics! You are blessed however.My husband and I and two highly regarded specialist searched for almost 3 years to find a name for this monster killing me! No one anywhere had a clue and later drs.had never heard of Levator ani or pudendal pain.There is so much info now ,even though most drs.will not learn to treat it.I feel I must send out any info I have to any site pertaining! I need the information you seek! Judy r

[sskn in reply to JudyRentz]

Judy rentz: dr. Antolak started independently doing these surgeries in 2003. He has done less than 200. I wish you all the success in the world and pray for your full recovery but I just want you to know the facts. Dr ansell in Huston has done the most in the usa at 400 followed by dr hibner . I hope thAt helps.

[JudyRentz]

I a so shocked to hear this.Dr Antolak told me the number. I had a specialist in Chattanooga TN,who saved my life with internal blocks,which have now failed. I trust him totally and he told me to go to Antolak????????? Judyr

[sskn]

Hi judyrentz, there must of been a misunderstanding. He started doing them 2003. I know this for sure. I felt obligated to tell you this. Previous to 2003 he worked in the mayo clinic and a neurosurgeon did the surgery. There are only a few doctors that does this surgery and dr antolak is one of them. He is great at diagnosing it too because he personally does the PNMLT, wdt, and nerve blocks. But like I said dr ansell has done the most in the US at 400. Dr robert in France has done this for 30 years and has done 4000. So 7,000 is impossible .

[JudyRentz in reply to sskn]

This is a huge discrepancy! Maybe Antolak wrote the wrong number.I was shocked to see it! however,I contacted my former specialist today,whom I trust completely,and he told me I was in good hands! I've waited a long while,so I am going to Minnesota.Thanks for the info. Judy r

[sskn]

Hi judyrentz, you are absolutely in good hands and I hope we beat this disease. He cares a lot and is very smart. Also his team is so helpful. Good lick.

[Limbo]

I live in Chattanooga, Tn. My son has PNE. We have been to Houston and talked with Dr. Ansell. He told us that the improvement rate with surgery is 40-60%. We set up a surgery date in July 2013, but b/c of the low improvement rate, my decided to wait for now. Sadly, b/c of Obamacare, his insurance dropped him in Dec. 2013. Hope your surgery goes well. Please let me know how you are doing at [e-mail]. I will do all I can to find the best results and care for my son. Hoping for % increase of the surgery with better techniques.

[Arbust91 in reply to Limbo]

Obmama care actually made it ILLEGAL for insurance companies to drop people for preexisting conditions.

[Limbo]

Funny, you are listed on catfish's site as one who has already had the surgery. Am I misunderstanding or getting the run around???

[Hidden]

I also had decompression surgery with Dr Hibner and am having excellent results .... Add me to the list please!

[ctysampler in reply to Hidden]

I am a patient of Dr. Hibner's and I'm considering the surgery. Would you recommend Dr. Hibner and his team?

[Hidden in reply to ctysampler]

did you end up seeing dr Hibner?

[barbshall in reply to Hidden]

After five years of trial treatments, dozens of injections months of PT and the list goes on and on I had surgery with Dr Hibner on March 6, 2017 and am very hopeful of some relief. I'm very aware that not every one is helped so it's a waiting game. I'm happy for you!

[andrea99 in reply to barbshall]

barbshall

How are you doing with your recovery. After 4 years of hell I am considering going to Dr. Hibner. Was yours a pudendel entrapment?

[saintonhigh in reply to andrea99]

Andrea did you have the surgery?

[Fe1aii in reply to barbshall]

Hello,

I saw your post on health unlock where your said you were had a procedure done by Dr Hibner in March, and was wondering if you had the procedure, and if you have had any relief since the surgery?

I have been dealing with PNE since 2007 and really don't know how much more of this I can endure. I was schedule to have the PNE entrapment release operation done back in 2015, Dr Hibner was going to do the procedure, I was in AZ, scheduled to have it done, when at the last minute I was told that there had been a change made by the AMA that did not allow an OBGYN to perform this procedure on a male effect immediately. I have flown to AZ from Fl, rent a place to stay for the recovery and was hoping for some relief. Come to find out, this change by the AMA was an out for my insurance, they said they would not cover the procedure, even though they had pre approved it. I went back to FL, fought with the insurance company and got know where. Since some years have gone by, I getting worst, and am know ready to fight the insurance company again, put I really want find out how other people had done after the surgery before going down that road again. Thanks for any thing you can share about your experience with the surgery.

Jim

[Hidden in reply to Fe1aii]

did you ever have the procedure?

[saintonhigh in reply to barbshall]

Hi - can you tell me how your surgery turned out?

[Fe1aii in reply to Hidden]

I just found this site and see that you had a procedure for PNE done by DR Hibner and had great results. I don't see any dates on these post, but U was wondering if you could tell me when you had your procedure, and if your still doing well.

I have been dealing with PNE since 2007, In have have had the blocks, I have an nerve stimulation device, and a pain pump. The stimulation device helps a little, the pain pump does not seem to do anything any longer, I have had it in since 2014.

Thanks for any feed back you can give me about the procedure and your results.

Jim

[saintonhigh in reply to Hidden]

You had surgery with Dr. Hibner and it was a success? Can I ask how much you improved?

[ga138650]

Hi All,

New to this forum and trying to get a grasp as to what I'm battling. I read all your post regarding PN surgery and now contemplating a surgical procedure. I'm a male who's been suffering from perineal pain (mostly mid-line), left testicular and penile pain to the tip for a year and 6 months too long. I've tried PT, myofacial and trigger pain and have some success, but it was short lived to 8 weeks of remission (90% I would say). Trying to remain positive that this will work again, although, it's exhausting me financially and feel a surgical procedure gives me my best odds at putting all of this behind me. Here is my problem and hoping that there are some males on this forum who can give me there opinions. I've been diagnosed with CPPS, IC and maybe PN, oh, and I had Prostititis, maybe...no one Urologist have confirmed any of these BTW. I feel I have PNE and it moves around, while burning and tingling all day, everyday, 24X7. No relief w/ any meds and I'm on a ton including Gabapentin, Tylenol and Oxy (only for extreme measures). Has anyone had decompression surgery in the US or have any reviews from Dr. Dellon?