Newly diagnosed with ET. How to afford Pegasys???
Over the course of the last few months, I’ve had a lot of ups and downs from my recent diagnosis of ET Jak2+ ( 5% mutation ), platelets were ...
Burning finger tips
Hi sorry to bother everyone again but does anyone else get burning finger tips? My dose of Pegasys was increased in the week which is probabl...
Just come out of appointment with haematologist and platelets now in 770s and I’m 62 so high risk! He wants me to start Pegasus....
Miracle of Pegasys
Hi everyone I had my latest appointment today and I've been on Pegasys for about eight weeks gradually inceeasing to 90mg fortnightly and alr...
Itching/pruritis as a side effect of Pegasys
Pegasys and this crazy, unmanageable itching!!!! Does anyone have a recommended treatment for the pruritis caused by Pegasys?...
Pegasys 180 injection reaction
Morning all, So I've been off of Hydrea for a few months now and on Pegasys 180 for 4 weeks. Used 2x quater and 2x half dosage so far....
Pegasys struggles..any tips?
Hi All 48 and diagnosed with ET ( mpl mutation ) after a routine blood test 10+ years ago....
Pegasys - possibly closer to slowing progression than anything else?
Hopefully this is not an irresponsible header since may raise false hopes, especially for those who can not tolerate Pegasys. However the quo...
Changing dose of Pegasys
Hi everyone hope you can help I have been on 45mg of Pegasys weekly for 17 months and bloods all great it’s worked very well for my PV with l...
Travelling with Pegasys
Hi everyone I've just started on Pegasys. I'm thinking ahead to holidays abroad and I've seen mention on here of people having travel pouches...
Pegasys-sounds the best so far?
Is Pegasys so far the best for ET and cure the disease as I read many post saying that for some people, the treatment can be stopped after pl...
Experience with Pegasys
Just joined MPN Voice, I was diagnosed with ET 2 years ago, recently had a more definitive diagnosis, CALRins5 ( Type 2 ), other non driver m...
My cholesterol is rising, we think it is linked to pegasys and PV. Any thoughts or advice if statins are a good option in general for women w...
Hi everyone I saw my haematologist yesterday for my ET. Platelet count is gradually going up....
My platelets are in the 800s and I have an unknown MPL mutation....
Pegasus and Liver Function
ET CALR positive, Following my haem appointment and discussing my blood results due to white cells decreasing and red cells increasing it was...
Onset of Pegasys side effects?
I'm about to start Pegasys, 45 mcg, at Mass General Hospital in Boston tomorrow for PCV. I live about 2 hours away, depending on traffic, and...
Platelets rise again
Hi all I've been on Pegasys for a few months now, 90mcg once a fortnight. Platelets have been dropping a lot but at my regular appointment ye...
Two side effects from Pegasys
Now that I've been on the Pegasys ( 45 mcg/ml ) for 5 weeks I'm fighting two major side effects - itching and anxiety/restlessness and I'm wo...
Combining Pegasys and ruxolitinib (Jakafi) for MF: has anyone tried it?
Hi. I'm having a grim time at present, as the increased risk of aggressive skin cancers triggered by the ruxolitinib I’m taking ( was inc to ...
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