Severe leg joint pain
I have PV and am on Pegasys 90 mcg weekly. I have terrible hip and knee joint pain....
Taking Interferon for the first time - when do you take and why do you take at that time ?
I have ET CALR + and am due to see a specialist on Sept 11th, I am 54 and work....
Anyone out there on PEGASYS Interferon ?
Hi all, I am 54 next month and was diagnosed 3 weeks ago with ET with CALR+ after blood counts of 1220 and 1250....
Break from Pegasys
Interesting consultation today. After an 8 week break from Pegasys my platelets have only increased from 298 to 366 and reassuringly my other...
Pegylated Interferon...starting soon
Hi fellow MPN-ers, I’ve just been told that I don’t have ET, but actually have PV....
Hi, can anyone tell me the maximum dose for Pegasys? I've been on it several months with ever increasing doses as not getting any reduction i...
Explain the fatigue
I am always so fatigued; that's why I kept going to the doctor and why she finally did a CBC and found my PV ( JAK2+). My labs are almost all...
Good results today
Good results at my 3-monthly clinic appointment today - platelets 349 with other counts OK too and LFT back to normal 😀 Staying with Pegasys...
Lyrica (pregabalin), Trepiline
Hi all, I have ET Jak2+ and am on Pegasys 90 mcg every 3 weeks. Peg is working well, although rather harsh on my liver....
New oncologist new diagnosis
I saw a new oncologist yesterday and he believes I have ET AND PV....
Fasciitis plantaris in Pegasys users .
I have become curious Some time ago I wrote a post complaining about pain in heel and arch....
It's s almost 4 months since I was diagnosed with PV. I'm 55 and on Pegasys 90 mcg weekly....
I am starting pegasys in 4 days and am looking for advice. I am a second grade teacher, and am exhausted at the end of every day....
Not been online for a while
Not been here for a while I switched to interferon and the side effects were very harsh, I am now under guys and just started pegasys hopeful...
PEGASYS Interferon and High BP
Just started on PEGASYS Interferon and my BP has gone up.... Thoughts?...
Has anyone on Pegasys experienced any episodes of severe dizziness or fainting?...
Change Hydroxycarbomide to Pegasys?
Therefore I guess it's being caused by the PV or the hydroxycarbomide....
Minimal Residual Disease or Cure in MPNs? Rationales and perspectives on Combo Therapy with Interferon-alpha2 and Ruxolitinib
Cutting edge therapy for PV - MF patients who do not respond to Jakafi or Pegasys alone - bit.ly/2tBjHVs...
Life with ET.
Hi !! I've been in here for a while without realising that it would be best and most well-mannered to have a profile :)...
Hello everyone, just need a bitof reassurance I was taken off Anagrelide 2 weeks ago as it didn't agree with me I had terrible palpitations. ...
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