Ava20102 years ago
My daughter is 5 years old and we are due to go to Majorca Wed 25th May and I can not get travel insurance under 420 minimum ... I'm a singl...
3 month old had nasal brushings yesterday
Allthels2 years ago
Hi, my daughter has had nasal brushing yesterday for PCD, she is 3 months old. I'm terrified and can't sleep. We went to a respiratory appoi...
Does anyone experience dizziness sometimes
fcfilice2 years ago
The last two weeks have been very stressful for me and my family because my brother who is 37 years old has been recently hospitalized for ...
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Restoring ciliary function to differentiated primary ciliary dyskinesia cells with a lentiviral vector
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indigoblue682 years ago
Has anyone with PCD had costochondritis? If so how do you do bronchial hygiene? I am currently experiencing costochondritis and it's very ...
Travel medical insurance
Brora712 years ago
Hi. Can anyone recommend any reasonable medical travel insurers. I'm 45 with pcd, bronchiectasis and have just been prescribed o2 at night ...
Reacurring cough/snotty straight after anti-biotics...
KayErin2 years ago
Hiya 2 weeks ago my daughter who has PCD started coughing more and had a snottier nose than usual so i took her to the GP for her usual dose...
PCD Management Advice
Swer2 years ago
I have 2 children. A girl who just turned 5 and an 18 month old boy with suspected PCD. The consultant is treating them as such. We are tryi...
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Moved to the UK, any PCD specialists?
JDFarina2 years ago
Let me start by introducing myself. I'm a 23 year old Canadian with Kartagener's. I'm a Radiographer, currently working in Newcas...
PCD and Diabetes
Rach292 years ago
I am currently in hospital due to an exercbation related to my PCD and Bronchietasis. I have had more infections infections in the past ...
the right specialist
kareniliff20022 years ago
I am currently under Dr Jones in Wythenshawe Hospital in Manchester, I end up seeing different doctors every time I go. To be honest I real...
I have read on the PCD support website that I could be entitled to Disability Living Allowance (PIP). Its never been something I have though...
Has anyone had a lung transplant?
WhiteTara2 years ago
They are starting to talk to my husband about lung transplant, just starting the pre-transplant listing testing period. Has anyone had a lun...
25 Year old male and testosterone
Felix112 years ago
I'm an 25 year old male with PCD, and was diagnosed with PCD at an early age. Many problems has arrived, and some are gone (...
My son had another cilia biopsy
Apaton422 years ago
Hi everyone, my son is 3 and had his first biopsy which came back with abnormalities for pcd, they called us back for a second biopsy to tes...
Has anyone had pain from coughing?
Recently Mike got a hernia from the force of his coughing, so he uses a back support belt (the kind used for heavy lifting) which has helped...
matt3 years ago
If you’ve just arrived as a Pioneer member this is where it all begins. HealthUnlocked is a social network for health advocates like yoursel...
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