Any suggestions for consultants in the North West?
Thehappyhammera year ago
Hi, I'm in my 50's and live in Manchester. I was diagnosed with PCD about 25 years ago. I also have bronchiectasis and situs inversus. I was...
Adult Care in UK
fionac66a year ago
Hi - as you may know we have been working with the NHS to try to get a fully funded adult PCD Service which allows adult patients to be seen...
2 Replies1 Like
The vest systom
Chrisjudya year ago
Hi i would like to know how can i buy the vest systom (physio)
mixing with Child with Cystic FIbrosis
Katiehogana year ago
Hi. My daughter is starting high school in September. She has PCD and there is a child also starting with Cystic Fibrosis. I have to go to t...
Hi how many times a day would you say i must give my son chest physio thank you
Adults with PCD
yoyo87gfa year ago
I am 28 yrs old with PCD, My husband and I have been trying to get pregnant for 2 yrs and we just learned I can't conceive naturally so goin...
Doctor or not
Hi my son has pcd he is 7years old he have pcd and he startet now with croup must i take him to the doctor or treat him self at home im new ...
Advise on pcd
Hi every one my son is 7 years old and he was last moth diagnosed with pcd and is also Immunodeficiency can you please tell me what vitamens...
Katieamynewbs-95a year ago
I suffer from reverse of the organs and PCD and recently I have been suffering with fatigue a lot... Sometimes I can't even talk where I am ...
6 Replies1 Like
fcfilicea year ago
Today was the first time ever a doctor wanted to hospitalized me for a lung infection and breathing difficulty and I agreed with him but I h...
2 Replies2 Likes
Wife of a PCD sufferer
PCDWIFEa year ago
Hi, Im new to this forum but I was just wondering if there are any adults with PCD living in South West Wales. My husband is 35 and has PCD....
Ava2010a year ago
My daughter is 5 years old and we are due to go to Majorca Wed 25th May and I can not get travel insurance under 420 minimum ... I'm a singl...
3 month old had nasal brushings yesterday
Allthelsa year ago
Hi, my daughter has had nasal brushing yesterday for PCD, she is 3 months old. I'm terrified and can't sleep. We went to a respiratory appoi...
Does anyone experience dizziness sometimes
fcfilice2 years ago
The last two weeks have been very stressful for me and my family because my brother who is 37 years old has been recently hospitalized for ...
Check out this article
Restoring ciliary function to differentiated primary ciliary dyskinesia cells with a lentiviral vector
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indigoblue682 years ago
Has anyone with PCD had costochondritis? If so how do you do bronchial hygiene? I am currently experiencing costochondritis and it's very ...
Travel medical insurance
Brora712 years ago
Hi. Can anyone recommend any reasonable medical travel insurers. I'm 45 with pcd, bronchiectasis and have just been prescribed o2 at night ...
Reacurring cough/snotty straight after anti-biotics...
KayErin2 years ago
Hiya 2 weeks ago my daughter who has PCD started coughing more and had a snottier nose than usual so i took her to the GP for her usual dose...
PCD Management Advice
Swer2 years ago
I have 2 children. A girl who just turned 5 and an 18 month old boy with suspected PCD. The consultant is treating them as such. We are tryi...
11 Replies1 Like
Moved to the UK, any PCD specialists?
JDFarina2 years ago
Let me start by introducing myself. I'm a 23 year old Canadian with Kartagener's. I'm a Radiographer, currently working in Newcas...
PCD and Diabetes
Rach292 years ago
I am currently in hospital due to an exercbation related to my PCD and Bronchietasis. I have had more infections infections in the past ...
the right specialist
kareniliff20022 years ago
I am currently under Dr Jones in Wythenshawe Hospital in Manchester, I end up seeing different doctors every time I go. To be honest I real...
I have read on the PCD support website that I could be entitled to Disability Living Allowance (PIP). Its never been something I have though...
Has anyone had a lung transplant?
WhiteTara2 years ago
They are starting to talk to my husband about lung transplant, just starting the pre-transplant listing testing period. Has anyone had a lun...
25 Year old male and testosterone
Felix112 years ago
I'm an 25 year old male with PCD, and was diagnosed with PCD at an early age. Many problems has arrived, and some are gone (...
My son had another cilia biopsy
Apaton422 years ago
Hi everyone, my son is 3 and had his first biopsy which came back with abnormalities for pcd, they called us back for a second biopsy to tes...
Has anyone had pain from coughing?
Recently Mike got a hernia from the force of his coughing, so he uses a back support belt (the kind used for heavy lifting) which has helped...
matt2 years ago
If you’ve just arrived as a Pioneer member this is where it all begins. HealthUnlocked is a social network for health advocates like yoursel...
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