When do you know when you need to see a doctor?
KayErina year ago
So my daughter is 3 and a half she was diagnosed around 4months so i should know what im doing! I was just wondering when you feel you/your ...
Karloa year ago
Hi everyone! I'm new to the forum but not to PCD. I've been diagnosed with PCD as a child, at the age of 13, currently I'm 32 years old now....
PCDWIFEa year ago
Paul's consultant has said the next step is a lung transplant. Has anyone on here had one or know any one that has had one for PCD? He's ...
PCDmama2 years ago
My 3 year old son's doctor is recommending sinus surgery to open up the drainage passages for more efficient draining. Have any of you with...
Having a tough time.
PCDWIFE2 years ago
I'm really struggling at the moment, my husband has taken a turn for the worse with his condition and has been on constant IV's in the ho...
dmacheta12 years ago
Hi would appreciate advice on hypertonic nebulisers. Is it something that is routinely prescribed in adult patients with PCD? I have been on...
Ill health retirement
Iram_sa2 years ago
I've just signed up and looking for some advice and help. I've been teaching for 17 years now (I know some may say risky with scho...
Hi I am 52 years old finally diagnosed with PCD after persisting for 26 years to get a diagnosis!
I have been colonised with pseudomonnas fo...
Physio for 3yr old
KayErin2 years ago
My daughter was diagnosed with PCD at around 5months but as shes getting older im finding physio harder she either doesnt want to do it or t...
Gastrointestinal problems PCD
Grace96142 years ago
I am currently awaiting genetic results for PCD. I had neonatal distress and I am under the Rotal Brompton. I had a lung op at 18 and si...
Pcd and cystic fybrosis
Chrisjudy2 years ago
Hi is it possible that my child could have pcd and cystic fibroses becouse his doctor did genetic tests on him and this is what she said is ...
16 year old can't accept his diagnosis
Caz32832 years ago
My 16year old son was diagnosed with PCD 3 weeks ago. He is finding it extremely hard to accep it. In fact he says he just doesn't want to. ...
Can you do some PCD research in Southampton before end of September?
fionac662 years ago
Can you help with some research into a new portable nasal nitric oxide analyser to screen for PCD. Southampon Hospital are looking for adult...
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Travel Costs to See a Specialist
hannahjames2 years ago
I am very fortunate in that I get to see a specialist once a year but I live in Cornwall and the specialist is in London. It costs me £130 i...
Recurring Ear Infections with Ear Tubes
Paisley552 years ago
This is my first post and I actually live in the United States not the UK. I am posting here because there seems to be more s...
Heat abroad effects someone with PCD ?
Emmabbop2 years ago
We have recently been on holiday to Portugal with our boys. One of whom has PCD.
The weather has been very hot but we are every careful as h...
Luci812 years ago
Hi just wondering if your child has seizure when hv fever due to infection? my daughter ( 28 mths has situs inversus and pcd) has had 2 febr...
PCD life expectancy
Tania1232 years ago
My husband who is 30 years old, has just been diagnosed with PCD along with situs inversus.
I am live in NY and am still trying to fin...
UK Life Insurance
Emma_832 years ago
Have just bought a house in the UK and have been refused life insurance by one procider. Broker is looking around for another but th...
Any suggestions for consultants in the North West?
Thehappyhammer2 years ago
Hi, I'm in my 50's and live in Manchester. I was diagnosed with PCD about 25 years ago. I also have bronchiectasis and situs inversus. I was...
Adult Care in UK
Hi - as you may know we have been working with the NHS to try to get a fully funded adult PCD Service which allows adult patients to be seen...
2 Replies1 Like
The vest systom
Hi i would like to know how can i buy the vest systom (physio)
mixing with Child with Cystic FIbrosis
Katiehogan2 years ago
Hi. My daughter is starting high school in September. She has PCD and there is a child also starting with Cystic Fibrosis. I have to go to t...
Hi how many times a day would you say i must give my son chest physio thank you
Adults with PCD
yoyo87gf2 years ago
I am 28 yrs old with PCD, My husband and I have been trying to get pregnant for 2 yrs and we just learned I can't conceive naturally so goin...
Doctor or not
Hi my son has pcd he is 7years old he have pcd and he startet now with croup must i take him to the doctor or treat him self at home im new ...
Advise on pcd
Hi every one my son is 7 years old and he was last moth diagnosed with pcd and is also Immunodeficiency can you please tell me what vitamens...
Katieamynewbs-952 years ago
I suffer from reverse of the organs and PCD and recently I have been suffering with fatigue a lot... Sometimes I can't even talk where I am ...
6 Replies1 Like
fcfilice2 years ago
Today was the first time ever a doctor wanted to hospitalized me for a lung infection and breathing difficulty and I agreed with him but I h...
2 Replies2 Likes
Wife of a PCD sufferer
Hi, Im new to this forum but I was just wondering if there are any adults with PCD living in South West Wales. My husband is 35 and has PCD....
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