Introducing myself

[Allison57]

I am Allison. I live in Texas. I unfortunately became very sick in late 2014, bit didn't go to the Dr for a few months. I was hospitalized and diagnosed with stage 4 cirrhosis. Recieved a liver transplant Thanksgiving day 2016. Was doing well until at a regular 3 month lab ALP jumped from 150 to 450. Hepatologist already knew I have an ANA marker. Had a MRCP which showed NO cirrhosis and bile ducts all looking good. Feeling very positive that I am ahead of the disease this time around, although you can't imagine how disappointed I am to be dealing with PBC again.

[Sona_akb]

Thanks god ❤️❤️❤️

[PBCCarol]

Sorry to hear you are goi g to deal with PBC again but you are in good hands with your transplant team watching over you. Did you know there is a PBC Patient Registry? It would be helpful to researchers to get people enrolled there that have had their PBC return after transplant. Go to pbcers.org to find the link for enrolling. All that is required is inputting your health history.

[Elliweim]

I am now understanding that PBC begins with the gut and happens to effect the liver. I am trying some regimens for gut health and trying to switch to a plant based diet.. my journey begins. I will tell when I know more.

[Bama_girl in reply to Elliweim]

Interesting!! Please share with us as you learn !🤗

[Allison57 in reply to Bama_girl]

I know less about PBC than I do about cirrhosis. I got diagnosed at stage 4, so saving my liver was not possible, although we tried for a year. I never knew I was at risk to getting it again. I am very lucky they were watching me so closely. I was freaked out at first but now that I know there is no damage at this time, I do feel better. I know how to live a healthy liver life now. I pay attention to every single thing I put in my mouth...because we all know everything gets processed through our liver. But I have so much compassion for those with damage. I have been through every stage to end stage. It is a difficult path.

[Elliweim in reply to Bama_girl]

Will do