support group in USA

Does anyone on this site live in USA, if so have you tried to receive SSDI, I also have PBC. I live in Louisville, Ky can't find a support group for either groups.

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8 replies

    LoveMyLiver
    LoveMyLiver

    Yes, I live in the US. Are you inquiring about Social Security Disability? I know there's lots of information online but I've never applied.

    LoveMyLiver
    LoveMyLiver

    Yes, there is a support group here in the US. It's called PBCers Organization and can be found at pbcers.org. Hope this is helpful.

    BOBBIETINKER
    BOBBIETINKER

    Really looking for people in Louisville, KY so we can meet and start an awareness of PBC. Thanks already a member of PBCers.org since diagnosed.

    tinapro
    tinapro

    I live in the US. I have filed for SS Diability and have been denied twice and now waiting for the hearing. I didn't have an attorney until I was denied twice. pbcers.org is a great site and there is also a couple groups on facebook.

    BOBBIETINKER
    BOBBIETINKER

    Same here but I got a lawyer after first denial. Praying for a good decsion in your favor. Let us know how it turns out.

    Doxiegal
    Doxiegal

    I'm in the US. I ditto pacers.org. Here's a link to SSDI on PBC...

    www.socialsecuritydisabilit...

    NaeNae
    NaeNae

    I'm in the states also, Virginia. Keep us updated on the disability. Good luck!

    Cherwash
    Cherwash

    I am in the good ole USA. Oklahoma to be exact. I recently had to file for disability, I am waiting for a decision now. I am so hoping it is approved and I don't have to keep fighting for it. My plan, if denied, will be to obtain an attorney to fight the rest of the way for me. Good luck to you.

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