Posts - PBC Foundation | HealthUnlocked

🥳🤔 Who remembers the theme of their high school prom or school dance? Can you recall your dress, the decorations, or your date?✨

Administrator•1 hour ago

1 Reply

Friday Fun Question

🥳🤔 Who remembers the theme of their high school prom or school dance? Can yo...

Administrator•3 hours ago

Moderating a PBC support group before for several years, I had members nearly from every state in the US. If anyone would like to share what state they are...

Where in the US?

Moderating a PBC support group before for several years, I had members nearly fr...

Administrator•20 hours ago

I have to be honest here... I'm wondering why so few members are asking for any advice from other members about any aspect of their PBC experiences or...

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Unsure

I have to be honest here... I'm wondering why so few members are asking for any ...

How do you honestly feel you are doing (mentally or physically) since your diagnosis?I hope several of you will share your feelings about this. In some ways,...

Administrator•20 hours ago

2 Replies

Thursday's Thoughts

How do you honestly feel you are doing (mentally or physically) since your diagn...

Administrator•1 day ago

If anyone would like to have some local contact information about support groups in their region, please let me know. I have contacts in Ayshire, Co. Durham...

regional support contacts

If anyone would like to have some local contact information about support groups...

Administrator•2 days ago

Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all,...

Introduction to our newer members

Hi - and welcome! My name is Donna - I facilitate this support group for The PB...

Administrator•2 days ago

I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member...

new members

I know all too well how overwhelming this diagnosis can be to anyone. All of the...

Administrator•2 days ago

I want to share more of The Summit information with you. I know many of you are literally from countries around the world. At The Summit we were given the...

Around the world...

I want to share more of The Summit information with you. I know many of you are...

Administrator•2 days ago

Wednesday's Word

fibrosis...

Administrator•2 days ago

I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated....

What if?

I mentioned to you that one of the main premises of the Summit was to think abou...

What has helped you with your fatigue? any particular exercise? I know this is something that so many of us experience to different degrees....

Administrator•3 days ago

8 Replies

Tuesday's Tips

What has helped you with your fatigue? any particular exercise? I know ...

Administrator•3 days ago

Diagnosed with PBC 20 years ago which is !O3IS34zum=& well to OCA. But I have very painful legs particularly when resting . And a recent worrying symptom is...

just diagnosed with high cholesterol. Healthy weight and blood pressure. Could pbc be a factor

Diagnosed with PBC 20 years ago which is !O3IS34zum=& well to OCA. But I have ve...

Dragon6556

•3 days ago

10 Replies

organizing

I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and...

I started organizing all my notes yesterday from the Summit. I will begin to sh...

What have you done for yourself in the past week? We all need to believe we matter enough to take time for ourselves. Share with us what...

Administrator•4 days ago

8 Replies

It's 'Monday Me!'

What have you done for yourself in the past week? We all need to believe we mat...

Administrator•4 days ago

Got home around 10pm last night. Not sure quite how many hours I'd been up but I do know it's always good to be in your own bed. International travel is not...

Home at last!

Got home around 10pm last night. Not sure quite how many hours I'd been up but I...

Administrator•5 days ago

Four amazing days have come to an end. Attending The International PBC Foundation Summit was nothing short of amazing ! Patients, patient advocates, nurses,...

Homeward bound...soon

Four amazing days have come to an end. Attending The International PBC Foundatio...

Administrator•7 days ago

I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a...

Liver disease, mast cells and antihistamine

I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link ...

Readlots

•7 days ago

16 Replies

PBC/AIH

hi I have pbc/aih and on the usual meds . Just wondering if anyone has any trouble with their joints . I am getting so much grief from my knees . Had one sore...

hi I have pbc/aih and on the usual meds . Just wondering if anyone has any trou...

She-66

•7 days ago

10 Replies

Collaboration of Ideas

Yesterday there was a real time artist creating a collage of all the discussions/ideas from various group meetings. We tried to narrow all the 'what if we...

Yesterday there was a real time artist creating a collage of all the discussions...

Administrator•8 days ago

Good morning, I was diagnosed in November from routine bloodwork with PBC. Started URSO immediately, but at 750 mg URSO daily which, at 61 kg, may not be...

Brain Fog

Good morning, I was diagnosed in November from routine bloodwork with PBC. St...

Gaspereaux

•10 days ago

Share with us how you've taken care of yourself mentally and/ or physically this past week. We all deserve to take time for us...no matter how small the...

It's 'Monday Me'

Share with us how you've taken care of yourself mentally and/ or physically this...

I'm here I Edinburgh. I may have free time tomorrow. Anyone interested in meeting at the hotel ? Message me in a 'chat'. I'm staying at the Delta Marriott.

Administrator•11 days ago

12 Replies

Coffee anyone?

I'm here I Edinburgh. I may have free time tomorrow. Anyone interested in meet...

Administrator•12 days ago

Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diarrhoea lately. Does anyone else have this trouble, also does it mean it has...

Ursodeoxycholic acid

Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diar...

Hidden

•13 days ago

9 Replies

leaving soon...

I will be leaving for Edinburgh in a few hours. I'm all packed... got it all in a backpack believe it or not. Determined not to check a bag. We will see how it...

I will be leaving for Edinburgh in a few hours. I'm all packed... got it all in ...

Administrator•14 days ago

What was your favorite place to vacation?

Friday Fun question

l have been making and drinking blueberry smoothies made with kefir does anybody know whether kefir is ok with a PBC diagnosis l also have fatty liver thanks...

Administrator•14 days ago

1 Reply

kifer

l have been making and drinking blueberry smoothies made with kefir does anybod...

kingsnorth

•15 days ago

7 Replies

forgetful?!

I was just corresponding with a member who said she lived in Arkansas. Not I can't find the messaging. DUH! Can you please post on here again? I have the...

I was just corresponding with a member who said she lived in Arkansas. Not I can...

Administrator•15 days ago

How and when did you tell your friends, family, or colleagues about your diagnosis>? Is there anyone you haven't told? What were the reactions you received?

Thursday Thoughts

How and when did you tell your friends, family, or colleagues about your diagnos...

I'll be leaving for The International PBC Summit in Edinburgh this Friday afternoon. I will return late on April 13th. I am excited to meet some interesting...

Administrator•15 days ago

7 Replies

Scotland bound....

I'll be leaving for The International PBC Summit in Edinburgh this Friday aftern...