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PBC Foundation

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No one itches???

My 'Thursday Thoughts' was a conversation (hopefully) about itching. If anyone...
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Tonight in the UK

from the PBC Foundation..... We provide support to all those affected by PBC,...
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Thursday Thoughts.....

Let's talk about that 'itch' today......Do you itch? What have you found helps ...
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Wednesday Word

ALT - Alanine Transaminase This is a blood test performed as part of your rout...
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more hope

https://www.uchicagomedicine.org/forefront/gastrointestinal-articles/masld-drug-...
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always question

Just this morning there was a post about questioning the legitimacy of a survey ...
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Legitimate ****

I sent an email to CEO of PBC Foundation about legitimacy of the itching survey....
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Tuesday Tips

What advice did you get from your doctor when you were first diagnosed? or... d...
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Online itch survey

Good morning all, I have received an email asking me to complete an online surve...
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Is sacroiliac pain common?

Hi everyone, Still fighting lower back pain….it was much worse a few months ag...
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unanswered questions

I'm excited to be leaving for The International PBC Summit in Edinburgh the end ...
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It's "Monday Me!" Day

I hope some of you share what you've done in the last week or so just for yourse...
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Ultrasound/Biopsy show cirrhosis, but fibroscan score is 7.4

I’m somewhat perplexed… since my diagnosis I’ve been told I have cirrhosis, beca...
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Breakthrough for PBC

https://health.ucdavis.edu/news/headlines/clinical-trial-may-offer-relief-for-ra...
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links

In the past couple of days, Ive posted the links to the EASL (European) and AASL...
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AASLD organization

www.aasld.org This is the site for the American Association for the Study ...
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Experiences with urso, ocaliva and bezafibrate

Hi everyone!I was just curious about your experiences taking a combination of ud...
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Friday 'Fun' question

What was/is your favorite boardgame to play?
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Is an Alkaline Phosphate level of 71 (UK) good?

Is an Alkaline Phosphate level of 71 (UK) good? Was put on steroids to deal with...
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MRE information

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4075049/
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for all new members of late.....

Hi - and welcome! My name is Donna - I facilitate this support group for The PB...
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Thursday Thoughts...

How hard has it been to have support from family and friends since your diagnosi...
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'Must Have' Guidelines

I asked the PBC Foundation to send these to me.. I'm passing them along. H...
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'Must Have' Guidelines

I asked the PBC Foundation to send these to me.. I'm passing them along. H...
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Mct oil

Can you take Mct oil if you have pbc?
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European Guideline for Diagnosis and Treatment of PBC

This is the direct link to the PDF of the guidelines EASLGuidelinesPublication....
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Fibroscan results

Find Your Fibrosis ScoreDisease DiagnosisLiver Stiffness ResultYour Liver Choles...
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from Canadian PBC Society....

I know some of this is very technical but I thought it might be helpful, none th...
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Expert Q&A session

Dr Martin Weltman joins us from Sydney, Australia tomorrow to answer your #PBC q...
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friendships

I had asked if anyone's social life had changed as a result of PBC. I know in my...
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