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PBC Foundation

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What if?

I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated....

I mentioned to you that one of the main premises of the Summit was to think abou...

DonnaBoll

Administrator•16 minutes ago

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Tuesday's Tips

What has helped you with your fatigue? any particular exercise? I know this is something that so many of us experience to different degrees....

What has helped you with your fatigue? any particular exercise? I know ...

DonnaBoll

Administrator•38 minutes ago

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just diagnosed with high cholesterol. Healthy weight and blood pressure. Could pbc be a factor

Diagnosed with PBC 20 years ago which is !O3IS34zum=& well to OCA. But I have very painful legs particularly when resting . And a recent worrying symptom is...

Diagnosed with PBC 20 years ago which is !O3IS34zum=& well to OCA. But I have ve...

Dragon6556

•7 hours ago

1 Reply

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organizing

I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and...

I started organizing all my notes yesterday from the Summit. I will begin to sh...

DonnaBoll

Administrator•1 day ago

4 Replies

It's 'Monday Me!'

What have you done for yourself in the past week? We all need to believe we matter enough to take time for ourselves. Share with us what...

What have you done for yourself in the past week? We all need to believe we mat...

DonnaBoll

Administrator•1 day ago

6 Replies

Home at last!

Got home around 10pm last night. Not sure quite how many hours I'd been up but I do know it's always good to be in your own bed. International travel is not...

Got home around 10pm last night. Not sure quite how many hours I'd been up but I...

DonnaBoll

Administrator•2 days ago

3 Replies

Homeward bound...soon

Four amazing days have come to an end. Attending The International PBC Foundation Summit was nothing short of amazing ! Patients, patient advocates, nurses,...

Four amazing days have come to an end. Attending The International PBC Foundatio...

DonnaBoll

Administrator•4 days ago

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Liver disease, mast cells and antihistamine

I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a...

I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link ...

Readlots

•4 days ago

16 Replies

PBC/AIH

hi I have pbc/aih and on the usual meds . Just wondering if anyone has any trouble with their joints . I am getting so much grief from my knees . Had one sore...

hi I have pbc/aih and on the usual meds . Just wondering if anyone has any trou...

She-66

•4 days ago

10 Replies

Collaboration of Ideas

Yesterday there was a real time artist creating a collage of all the discussions/ideas from various group meetings. We tried to narrow all the 'what if we...

Yesterday there was a real time artist creating a collage of all the discussions...

DonnaBoll

Administrator•5 days ago

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Brain Fog

Good morning, I was diagnosed in November from routine bloodwork with PBC. Started URSO immediately, but at 750 mg URSO daily which, at 61 kg, may not be...

Good morning, I was diagnosed in November from routine bloodwork with PBC. St...

Gaspereaux

•7 days ago

6 Replies

It's 'Monday Me'

Share with us how you've taken care of yourself mentally and/ or physically this past week. We all deserve to take time for us...no matter how small the...

Share with us how you've taken care of yourself mentally and/ or physically this...

DonnaBoll

Administrator•8 days ago

12 Replies

Coffee anyone?

I'm here I Edinburgh. I may have free time tomorrow. Anyone interested in meeting at the hotel ? Message me in a 'chat'. I'm staying at the Delta Marriott.

I'm here I Edinburgh. I may have free time tomorrow. Anyone interested in meet...

DonnaBoll

Administrator•9 days ago

6 Replies

Ursodeoxycholic acid

Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diarrhoea lately. Does anyone else have this trouble, also does it mean it has...

Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diar...

Hidden

•10 days ago

9 Replies

leaving soon...

I will be leaving for Edinburgh in a few hours. I'm all packed... got it all in a backpack believe it or not. Determined not to check a bag. We will see how it...

I will be leaving for Edinburgh in a few hours. I'm all packed... got it all in ...

DonnaBoll

Administrator•11 days ago

3 Replies

Friday Fun question

What was your favorite place to vacation?

DonnaBoll

Administrator•11 days ago

1 Reply

kifer

l have been making and drinking blueberry smoothies made with kefir does anybody know whether kefir is ok with a PBC diagnosis l also have fatty liver thanks...

l have been making and drinking blueberry smoothies made with kefir does anybod...

kingsnorth

•12 days ago

7 Replies

forgetful?!

I was just corresponding with a member who said she lived in Arkansas. Not I can't find the messaging. DUH! Can you please post on here again? I have the...

I was just corresponding with a member who said she lived in Arkansas. Not I can...

DonnaBoll

Administrator•12 days ago

3 Replies

Thursday Thoughts

How and when did you tell your friends, family, or colleagues about your diagnosis>? Is there anyone you haven't told? What were the reactions you received?

How and when did you tell your friends, family, or colleagues about your diagnos...

DonnaBoll

Administrator•12 days ago

7 Replies

Scotland bound....

I'll be leaving for The International PBC Summit in Edinburgh this Friday afternoon. I will return late on April 13th. I am excited to meet some interesting...

I'll be leaving for The International PBC Summit in Edinburgh this Friday aftern...

DonnaBoll

Administrator•13 days ago

24 Replies

'Wednesday Word"

Since my question yesterday was concerning 'brain fog', I thought my word for today should be encephalopathy - here are specifics about...

Since my question yesterday was concerning 'brain fog', I thought my word for to...

DonnaBoll

Administrator•13 days ago

5 Replies

"Tuesday Tips"....

Does anyone experiences 'brain fog'? If so , how do you deal with it? Has it affected your job performance at all? Does everyone know what this is?

Does anyone experiences 'brain fog'? If so , how do you deal with it? Has it a...

DonnaBoll

Administrator•14 days ago

14 Replies

Just some thoughts....

First of all, thank you for your Easter wishes. We had a nice day. Perfect weather and able to sit outside after we ate. For me, as some of you might know, I...

First of all, thank you for your Easter wishes. We had a nice day. Perfect weath...

DonnaBoll

Administrator•15 days ago

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its "Monday Me!"

I hope some of you can share what you did just for yourself over the past week. We have to remember that we matter enough to take the time for ourselves...no...

I hope some of you can share what you did just for yourself over the past week. ...

DonnaBoll

Administrator•15 days ago

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Happy Easter!

I hope each of you have a lovely day today! Easter Greetings from here in the Midwest...🐣🐇

I hope each of you have a lovely day today! Easter Greetings from here in the Mi...

DonnaBoll

Administrator•16 days ago

9 Replies

Krill

Has anybody tried krill for joint aches? Somebody mentioned it to me today….

Gaspereaux

•16 days ago

2 Replies

Please join!

For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much...

For all of our new members, PLEASE make sure one of the first things you do afte...

DonnaBoll

Administrator•18 days ago

4 Replies

Friday Fun Question

What movie - at the theatre or on TV - have you seen the most times?

DonnaBoll

Administrator•18 days ago

15 Replies

No one itches???

My 'Thursday Thoughts' was a conversation (hopefully) about itching. If anyone experiences this with their PBC, I know it would be helpful to others to read...

My 'Thursday Thoughts' was a conversation (hopefully) about itching. If anyone...

DonnaBoll

Administrator•19 days ago

18 Replies

Thursday Thoughts.....

Let's talk about that 'itch' today......Do you itch? What have you found helps the itching for you? I know from my own experience how awful and consuming...

Let's talk about that 'itch' today......Do you itch? What have you found helps ...

DonnaBoll

Administrator•19 days ago

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Posts - PBC Foundation | HealthUnlocked

PBC Foundation

What if?

Tuesday's Tips

just diagnosed with high cholesterol. Healthy weight and blood pressure. Could pbc be a factor

organizing

It's 'Monday Me!'

Home at last!

Homeward bound...soon

Liver disease, mast cells and antihistamine

PBC/AIH

Collaboration of Ideas

Brain Fog

It's 'Monday Me'

Coffee anyone?

Ursodeoxycholic acid

leaving soon...

Friday Fun question

kifer

forgetful?!

Thursday Thoughts

Scotland bound....

'Wednesday Word"

"Tuesday Tips"....

Just some thoughts....

its "Monday Me!"

Happy Easter!

Krill

Please join!

Friday Fun Question

No one itches???

Thursday Thoughts.....

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