Anosmia: Hi again Just wanted to share... - PBC Foundation

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Anosmia

Sona_akb profile image
8 Replies

Hi again

Just wanted to share another concerns of mine with you.

Have you ever lost your sense of smell??

I can barely sense any smell recently.

I don’t have official diagnosis of sjogren but I suffer dry eye mouth nose.

And if yes, what is the solution?

Thank you

Sona❤️

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Sona_akb
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8 Replies
butterflyEi profile image
butterflyEi

my sense of smell seems to be heightened now however my mother lost her sense of smell but never had a diagnosis or given any help.

Sona_akb profile image
Sona_akb in reply to butterflyEi

Good for you ❤️❤️❤️

PBCRobert profile image
PBCRobertPartner

Just an aside... the dryness is called “Sicca Syndrome”, which can affect eyes, mouth and vagina (without getting into a sex/gender conversation!!).

Sometimes that Sicca Syndrome is caused by Sjoegren’s. Sometimes not.

Sona_akb profile image
Sona_akb in reply to PBCRobert

I hope it’s just sicca syndrome not sjogren 🙏🏻

liver-bird profile image
liver-bird

Yes, I can usually smell nice things but not the bad smells. I get targeted to change stinky nappies so it has its uses. 😂

Be careful though cos my car was giving off fumes which I couldn't smell. Fortunately I swapped cars with my husband one day and he immediately took my car to garage where they reconnected a pipe which had been pumping bad fumes into my car

Sona_akb profile image
Sona_akb in reply to liver-bird

It’s annoyingly bad. I miss the smell of food, cakes and parfums😭😭

EileenUSA profile image
EileenUSA

I’m so sorry you are having this problem on top of all the rest you are dealing with. I hope you have some support there. You are carrying a lot! I hope you get some relief.

hugs dear one.

Sona_akb profile image
Sona_akb in reply to EileenUSA

Thank you dear Eileen. Yes my problems are getting too much to carry. But I will stay strong and try to solve some of them. Surely with the help of my friends here in this community.

❤️ love

Sona.

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