Pbc/Aih: Well people I'm off to see my... - PBC Foundation

PBC Foundation

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Pbc/Aih

janine541 profile image
11 Replies

Well people I'm off to see my consultant at st james today to find a new treatment as I had to stop my ursalic acid due to unbearable itching.

Although after being off it 2 months the itch is as unbearable as ever it only stopped for 4 week

Hope everyone else is ok

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janine541 profile image
janine541
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11 Replies

Hi

Good luck with your appointment . Please let me know how you get on. Love and hugs Lynne xxxx

janine541 profile image
janine541 in reply to

Thankyou I will. Dont hold much hope. They tell you what you want to hear sometimes

in reply to janine541

Is anyone going with you? Also, write anything down that you need to ask and don't leave until you have answers, write the replies down. Will be thinking of you. Love and hugs Lynne xxxx

janine541 profile image
janine541 in reply to

Hi my dad is coming with me hes a retired nurse so he sort of understands most things

in reply to janine541

That's good xxxx

janine541 profile image
janine541 in reply to

All went well. Got some powders to try for the itch

in reply to janine541

Hi

I hope they work and you get some relief from it. Love and hugs Lynne xxxx

butterflyEi profile image
butterflyEi in reply to janine541

Only just picked up this thread. Guessing the powders are Questran or Questran light. I found they were best taken in kefir but before I discovered that I took it in a thick juice like mango and orange. Also the wisdom from The Foundation some years ago was to take on sachet before breakfast and one after . It does take a time to fet into the system. They worked in part for me but I also have rifampicin and sertraline now. Hope it works okay.

janine541 profile image
janine541 in reply to butterflyEi

Hi I took one in milk last night and it was fine but not felt the benefit as yet the itch is unbearable still

Cathycomehome profile image
Cathycomehome in reply to janine541

Hope all goes well for you xx

Knackeredknowle profile image
Knackeredknowle

Stay strong, we all here for you x

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