Robert - RE:STAGING

[gwillistexas]

Robert, wondering if you might share on ALF, again, about staging? Looks like some didn’t see it from before.

Thanks!

[Angel_b]

There’s a post of Roberts pinned to the top of the group. Is it that one?

[gwillistexas in reply to Angel_b]

It may be. 👍. We have a new lady on ALF fb Group, 71 yrs old & im reading different stages being thrown out there. Just thought if he posted again this little lady could read it. 😊

[Angel_b in reply to gwillistexas]

I’ve liked your response on it. Perhaps you could copy and send to her.

[gwillistexas in reply to Angel_b]

Thank you. I’ll try to get it there😊

[PBC2002 in reply to Angel_b]

How do we get the pin at the top of the group?

[martinap]

What is the ALF FB group and where can I find it and the post? Thx a million!

[gwillistexas in reply to martinap]

ALF (American Liver Foundation). They have a fb pbc support group. I can pm you😊

[SunnyXXOO]

Wondering how many know what their MELD Sore is?

SunnyXXOO

[PBCRobert Partner]

Hi,

An alternative might be to signpost new patients to here and to the Foundation, that way they get helpful info directly and are not reliant on a post showing up in a fb group.

I am one of 6 people at the Foundation and we do the best we can with our limited resources. The fb group I help when I can and repost things that are directly asked for by organisers but I do not work for ALF. So I tend to focus on here, I am afraid, and direct helpline calls from those registered with the Foundation. I know that sounds harsh but it is the best we can do...

[gwillistexas in reply to PBCRobert]

Thank you. This is true. When I saw the lady’s post & the answers, I immediately thought about your post. I had to try😊. Appreciate you🦋