Best test results in years due to bizafibrate

[shaza1966]

Hi pbcer's just want to announce how thrilled i am that after a year on Bizafibrate my bilirubin has gradually gone done fro 600 to 19 WOW ! ALT is 61, Alkaline Phosphatase 320 , GGT 280 . My Hematologist put me on Bizafibrate for the conditions of pbc , not only is my biliruben good but i no longer have hot hands & feet.

Best wishes to you all Shaza

[jane1964]

That's really good news pleased for you.

[shaza1966 in reply to jane1964]

Ty so much i was well chuffed hope your well

[butterflyEi]

Wow that is good news shaza1966 . I have read quite a bit recently about Bezafibrate, it would be good if it could filter through to other specialists.

[shaza1966 in reply to butterflyEi]

Thank you butterflyEi i'm well chuffed . I would recommend all pbcers to speak with there consultants to get on it if any one's bilirubin is very high

[EileenUSA]

Celebrating with you! Good to see such positive results!

[shaza1966 in reply to EileenUSA]

Thank you x

[Ottley3]

Great news! Congratulations

[shaza1966 in reply to Ottley3]

Ty Ottley3 hope you are doing ok x

[IOW-gal]

I have recently been prescribed Bezafibrate so here's hoping for good results at my next consultation.

[liver-bird]

Great news Shaza

[shaza1966 in reply to liver-bird]

Thank you it is so happy x

[Katiagreece]

Hi there, I take Bezalip, which I think is the same.

I was diagnosed with PBC 2014 but had it many years before that, and I’m celiac.

I had a fibroscan in 2016 and the result was 11.4 Which was a shock to me.

My doctor put me on Bezalip along with the Urso and a year later my fibroscan results were 7.4 which is so much better. Also my Alp and AST blood tests show normal, first time in many years...

I have no more fatigue...

Feel so much better taking these 2 meds together...

[gwillistexas in reply to Katiagreece]

Good news! May I ask what is Bezalip?

[EileenUSA in reply to gwillistexas]

medpagetoday.com/gastroente...

Article on bezafibrates and PBC.

nejm.org/doi/full/10.1056/N...

Hope this helps!

[gwillistexas in reply to EileenUSA]

Ok, I knew about benzafibrates, just wasn’t familiar with it called Bezalip. Thank you!🤗

[EileenUSA in reply to gwillistexas]

Think that's just a "brand name". I'm just so glad that this drug is helping some of our dear PBC sisters!

[gwillistexas in reply to EileenUSA]

Yes by all means. I would have to listen to Dr Gish again, but I think he said he’s getting close to prescribing it as well. We all welcome new options. 🦋

[gwillistexas in reply to EileenUSA]

I saved the medpage article I will read in depth later. I’m curious if it has to be taken with Urso or, if like Ocaliva, can be taken along.

[shaza1966 in reply to gwillistexas]

Hi gwillistexas i take my bezafibrate along side my urso . Has your consultant talked with you about it . Best wishes

[gwillistexas in reply to shaza1966]

G’morning Shaza. No, I have had good results with OCA so far. But it’s always good to have a back-up option. 🦋

[shaza1966 in reply to gwillistexas]

Yes gwillistexas it is always good to have a back up . Best wishes

[gwillistexas in reply to shaza1966]

Thank you. You as well🦋

[shaza1966 in reply to Katiagreece]

Hi Katiagreece , i am happy to hear of your results . I only wish my bezaibrate helped me with my fatigue , as i still get it know and again . My Gastroenterologist told me that there is no help for my fatigue and even after a liver transplant you may still suffer fatigue . Awe well ! i'm still over the moon with my results . Best wishes to you .