Low dose naltrexone

[flora]

Has anyone been given low dose naltrexone for PBC or any other autoimmune disease. I have been doing a wee bit of reading about it and it seams to be the answer to everything . I have PBC ,SS ,RA ,hashimotos, and depression,LDN has been used to treat all of these. just wondering how anyone got on with this drug.

[LindyRich]

I would be interested in answers to your question. I asked my GI if I could go on it. His reaction was ott.

Which country are you living in?

Lindy

[SunnyXXOO in reply to LindyRich]

I don’t understand, are you thinking about LDN?

[LindyRich in reply to SunnyXXOO]

Yes I would like to give it a try. My GI has a closed mind on the subject. He wouldn't even let me explain the minute dosage. I will get it eventually even if it means changing doctor or even hospital.

[danaLL]

My endocrinologist put me on for a little while. She is a huge fan. She thinks that the drug companies don’t make any money off of it, so doctors quit prescribing. I wasn’t on it for long enough to know that made a difference or not. If My recollection is correct, it was originally used to stop the progression of HIV ?

[SunnyXXOO in reply to danaLL]

Big Pharma are ruthless !!

[SunnyXXOO]

I’m taking 3mg LDN every evening.

[danaLL in reply to SunnyXXOO]

Has it helped get your numbers down or at least stop them from going up?

[SunnyXXOO]

Just went for day of testing at Lahey Hospital Burlington, Ma. My Specialist is the director of Liver Transplant unit, he was dumb founded when he saw my numbers. My numbers are the lowest they have been in eons, he can’t figure out why or how I managed to bring them so low with out using Westetn Medicine. Honestly, I not sure what brought them down. Could be my Integrative Physician’s protocol (which includes 3mg LDN) Dr Burt Berkson Las Cruses New Mexico or could be Cannabis Oil. I’m trying to get to the root of the problem and hope to fix it. Every Into Integrative Medicine 100%, I’ve been under Integrative Medicine for a very long time.

SunnyXXOO

[kp1234]

I take it along with Cholestyramine and Doxepin for itching. Still itch---but it's tolerable. No improvement in my "numbers".

[SunnyXXOO]

Well, LDN 3-4.5mg is all you need. A Regular GI MD can’t and won’t use Compound Pharmacies, LDN is ordered through Compound.

[Joanneconnor]

I’m going to order some I’ve heard good things, I have pbc and Hashimotos

[flora]

Thanks to all who answered sorry for not getting back to you all .I actually didn't remember about posting the question and today iI thought I know I'll ask on here. Then came on and found I already had .Going to doctors tomorrow so I'm gonna ask about it. Thanks

[Ktltel]

Hello, I'm sorry I'm just responding now. I have been off this site for a bit as I had company for most of the summer.

I've been on "low dose" naltrexone for almost a year. I've mostly been stable but my Alk-phos does fluctuate. Low dose naltrexone isn't a cure but an aid. I went off for about a month and noticed a big difference. My overall outlook and general feeling well was affected, as well as my energy level. It went way down. I went back on it and have stayed on it. For it to work its very best, your diet and light exercise comes into play too. I haven't been doing well on my diet 😔 but I can still say I feel better while on it. I do know I've done much better on it in the past when my diet was much better as well. I literally felt normal. You must be sure to purchase it from a reputable compounding pharmacy. I'm in the states. I get mine from Belmar Pharmacy in Colorado. If you have any questions please message me privately.

Stella❤