Urso: Why would you not take Urso unless you... - PBC Foundation

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Urso

Ellyne profile image
11 Replies

Why would you not take Urso unless you are not a responder? What were the side effects that made you switch meds?

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Ellyne profile image
Ellyne
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11 Replies
gwillistexas profile image
gwillistexas

Saw your post but didn’t see who you’re asking?

Ellyne profile image
Ellyne in reply to gwillistexas

I was asking anyone with this experience.

gwillistexas profile image
gwillistexas in reply to Ellyne

My situation was that I itched & broke out in huge whelps within 8 days of Urso.

Ellyne profile image
Ellyne

So you had an allergic reaction right away. I am noticing that I am having acid reflux and it is waking me during the night. I take all 3 pills with dinner. This is a new development

Louisethew profile image
Louisethew in reply to Ellyne

I take 3 urso in the morning and 3 before bed I find drinking a very big glass of water with them helps

Foote profile image
Foote in reply to Louisethew

You are taking 6 pills a day, what is the total doses in mg.?

ninjagirlwebb profile image
ninjagirlwebb

It might be better to space out the 3 pills. I take one in the morning & one at night. See if that decreases acid reflux.

Ellyne profile image
Ellyne

I will try that tomorrow.

Vvourakis1980 profile image
Vvourakis1980

I was totally constiipated and sick from not using the restroom to satisfaction.. this went on the past year.. I just stopped taking it

Dotyy profile image
Dotyy

Hi Ellyne, I too had the worst constipation, felt swollen all over, fluid retention. I’m taking second time around as post transplant and seem to have a worst reaction this time. I’ve been advised by hospital too halve the dose. I’m only taking one 250mg daily now helped hugely. I’ve always been a little sceptical about urso as to looking good on paper I’d clinical bloods, even masking the real extent of illness. However I hasten to add this is only a suspicion and I’m sure there is more evidence to the contrary. I certainly will continue to take urso at low dose and pray that my bloods are going in the right direction. I hope your getting on ok with them yourself. All the best to you.

Ellyne profile image
Ellyne

Spaced out the pills after each meal. 300mg each. Feeling much better now. Acid reflux gone. However, constipation remains. Using Senna. Otherwise ....

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