Recently diagnosied: Hi everyone I have just... - PBC Foundation

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Recently diagnosied

JacquelineRose profile image
8 Replies

Hi everyone

I have just been diagnoed with cirrhosis and she said my fibroscan result was 38. I was in total shock that I had cirrhosis as my GP said I was being referred for a "check up". I have lots of questions but the consultant is away now for Christmas and New Year but I wondered if anyone could give me any information /advice about my result being 38 - sure what this means and how much my liver is affected? Thanks xxx

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JacquelineRose profile image
JacquelineRose
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8 Replies
Ballymahon2 profile image
Ballymahon2

38 is high i am shocked your gp did not refer you to a specialist sooner where do you live is it uk

You need to see a consultant as soon as possible in new year

Hope all goes well for you

Your consultant will need to start you on treatment soon

JacquelineRose profile image
JacquelineRose in reply to Ballymahon2

Hi Thank you for your reply. I saw the consultant on Tuesday this week, my first appointment so the first thing is she going to organise an upper endoscopy to check for varices in the oesophagus. They took lots more bloods so just waiting for the next plan

Ballymahon2 profile image
Ballymahon2 in reply to JacquelineRose

Did you have symptoms before now my pbc was diagnosed from routine blood tests i have no symptoms

Hope all goes well for you

Ellewoods33 profile image
Ellewoods33 in reply to Ballymahon2

I had no symptoms other than elevated liver enzymes for a few years.

Ballymahon2 profile image
Ballymahon2 in reply to Ellewoods33

Same here

Ellewoods33 profile image
Ellewoods33

I had a scan with a score of 21. I was told that I had cirrhosis. My hepatologist did not think that I had cirrhosis so he ordered a liver biopsy. The biopsy revealed that I have Fibrosis stage 2. Try not to worry. The liver biopsy with several different samples is the only way to provide the real answers.

mjk98 profile image
mjk98 in reply to Ellewoods33

That's what my liver scan said fibrosis stage 2 I'm going for liver biopsy Jan 3 ...

Ellewoods33 profile image
Ellewoods33

Best of luck to you. I had no problems with the biopsy.

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