PBC and now Polymyalgia Rheumatica (PMR)

[mtrafter]

Hi I am new to this site but not to PBC, I have been living with PBC for 10 years, my journey has been mostly uneventful on Ursofalk, I enjoy my very active 6 grandchildren, I travel and worked fulltime until earlier than planned retirement 18mths ago due to fatigue and brain fog.

6 months ago was diagnosed with another auautoimmune disease Polymyalgia Rheumatica, have been on a tapering dose of Prednisone down from 15mg to 6mg, my Rheumatologist wants to put me on Methotrexate to potentially reduce the length of time I need to be on Prednisone ( can be 2years)

The Rheumatologist and my Liver consultant are in discussions I first had to have a Fibroscan to assess the state of my liver- result 8.2 I go for review and management plan in 2 weeks.

I would love to hear from anyone with both conditions and if treated with Methotrexate , does it have any effect on LFT's and any side effects experienced ? I have done some research on the drug and dont much like what I've found.

I look forward to hearing others experiences.

[Ballymahon2]

I just spoke to someone today about that drug he told me his late mother had a bad reaction to that drug think there are bad side effects to it

[jaws58]

I’ve just been newly diagnosed with PMR have also had PBC for 8 years and been coping ok on Urso working full time but will have to call time on full days for now. Awaiting to see specialists will keep you updated to events.

How has your past year gone? I see your post is year old.

Take care

J