Living while waiting for the other shoe to ... - PBC Foundation

PBC Foundation

9,381 members7,968 posts

Living while waiting for the other shoe to drop!

ILik3Pizza profile image
1 Reply

Diagnosed 6 months ago after 7 years of "unusual" liver tests. My primary ordered the AMA test on the advice of his partner but admitted that I'd have to see someone else if it came back positive since he had no idea what it was! So much blood work, ultrasounds, endoscope, and biopsy resulted in the diagnosis of stage 4 cirrhosis, fatty liver, PBC, GERD, and gastritis. For the first couple of months I read everything I could about this disease; the more I read the more obsessed I became. One prognosis was worse than the next. And then one day I realized that I was wasting all these beautiful asymptotic days by worrying! I decided to use whatever energy I have enjoying what I can. However, in the back of my mind I know that things could take a very ugly turn. I would really like a "timeline" -- how long can this liver hold out when it's already irreversibly damaged! Urso has helped with digestive issues, but the fatigue is like a wall I run into whenever I try to extend activities. Thanks for "listening"!

Written by
ILik3Pizza profile image
ILik3Pizza
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Ktltel profile image
Ktltel

Private message me your email address. I'd like to share something with you. OK. Please don't give up hope.

Stell ❤

You may also like...

Phosphatase not dropping

reevaluate. I went to my GP after 6 weeks for liver tests which were so bad I asked to be put on...

Waiting for diagnosis

about PBC. In August last year I was tested for coeliac as I was having digestive problems. Test...

No doagnosis, still waiting. Next stop MRI

had a liver biopsy the week before Christmas. Yesterday i got a letter for an mri of my liver. I...

A son trying to help my mother live longer.

being diagnosed with semi-late stage cirrhosis of the liver due to pbc really took a toll on me....

PBC and other autoimmune conditions

I have had PBC since 2004 and yesterday went for a Sheerscan, my consultant doesn't think a biopsy...