I tested positive for AMA M2 and ANA in March but as I moved house the transfer between specialists meant that I didn't find out what that meant until November. I have hyper mobility syndrome and arthritis (they have been querying rheumatoid for 3 years). My gamma Gt's have been raised for years, I recall being asked if I'm a heavy drinker first about age 16. I drink about 2 units a week. I am really struggling with extreme fatigue (though I do have a 14 month old) and aching, painful joints and bones. I have recently developed a swollen right wrist/hand/fingers which is very painful and I am now having Physio for. I also see a podiatrist for my foot pain, a rheumatologist because they've been querying immunosuppressant/ connective tissue disease for years. When I saw the gastroenterologist I didn't know why I was there (it was because of the positive AMA's but no one told me what that meant), the doctor had just started working at that clinic and I felt like he didn't give me the right information or ask me important questions. I now see I have a lot of symptoms of PBC and I feel like I'm in limbo. I have had a pain under my right rib for years which I put down to scar tissue after pneumonia, but maybe I was wrong. I have also been referred to the eye hospital in the past for dry eyes. I'm getting depressed honestly as I just wake up feeling shattered everyday. I'm having an MRI done of my liver on Saturday and then I just have to wait to see the gastro (who I have zero faith in) when I get an appointment.
I don't really know what to do with myself and I just wanted to express it to people who might understand.
Thanks and any advice appreciated