I was diagnosed with PBC about 5 months ago; although they figure I have had it for about 11 years. Now I was just diagnosed with Systemic Sclerosis as well. I kind of suspected as I had some of the symptoms (Raynaud’s for about 3 years and recently pain in hands, feet & chest along with tight shiny skin, etc).
A few weeks ago the gastro looked at my hands and right away had me do some bloodwork, xrays and set up an appointment with the Rheumatologist. I saw the Rheumy last Tuesday and he confirmed it. He is setting me up with a bunch of other tests to see if it has entered my heart and lungs. He is pretty sure it is in my esophagus. I have had such a hard time eating and swallowing. I had a gastroscopy last week and have yet to get the results from the gastro. I see him again in a couple weeks once he gets the biopsies back.
I am quite overwhelmed by all of this. I was just starting to get a handle on the PBC and now I have this too. I feel like I am falling apart, physically and a little emotionally. Anyone else out there that has both these diseases? How do you deal with it? Do you have any suggestions or words of comfort?
Thanks for any assistance!