This is not a momentous occaision, but, i just have found out that I have PBC after a biopsy. I'm a 64 year-old woman.
Over the years, I've always been a worrier, but, this time, it's come true. I'm having a hard time wrapping myself around this diagnosis.
I have read so much about this disease that I am in danger of believing all the bad stuff. One moment I think it's a death sentence, the other moment I'm thinking it's like high blood pressure-- control it and it won't kill you.
I hate being so worried. I did this way back after my second child was born, and it nearly destroyed me. I won't do it again. Fear paralyzes me.
I had slightly high ALP for a while, then numbers went down. I had the ama and ana. Finally, after a year and a half, the doctor suggested a biopsy which I had to give me the diagnosis. I have no symptoms what so ever. I could imagine I had fatigue, itch, and aches and pains from it, but, I've always had those things off and on through life.
I don't want this to define me, and I don't want to think about it constantly. Can I live with this well? Doctor says yes.. and even said I can live a normal life. He gave me no restrictions, and no rules and regulations. I feel good that he's aware of the horror this causes, and wants to minimize it so we can relax. He's an excellent, compassionate doctor who himself is partially paralyzed from a car accident.
So, I guess what I'm looking for here is support and hope. I'm a vigorous 64 year old that acts like young girl most of the time. I work in a nursery and garden center doing a lot of strenuous work. I don't want to lose that vitality or spirit..
It's a pleasure to meet you all. From the NJ Shore,