Has anyone on her had Plasmopheresis for th... - PBC Foundation

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Has anyone on her had Plasmopheresis for the dreaded itch?

littlemo profile image
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My consultant mentioned this to me about a year or so ago when I had a horrendous yr with the itch. However to cut a long story short the itch settled and I didnt need it. However itch seems to be getting little more troublesome past week or so so am wondereing if I should try this. Does it work and is it painful to have?

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littlemo
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SNOOZY profile image
SNOOZY

Hi littlemo,

I did a course of Plasma apheresis, earlier this year. it was trice a week for 8 weeks. my experience may be different to others. it was not successful. hurts only from the needles stabbing you in both arms every 3 days. you can put a semi permanent shunt in and save being stabbed every visit- I didn't want to have that . my itch has vastly improved through the drug Rifampicin, 300mg a day. life is so much better. good luck with your choice.

littlemo profile image
littlemo in reply to SNOOZY

Thanks Snoozy will discuss with dr think taking the Rifampicin sounds like the better option!

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