Where in the world are you? Please select ... - PBC Foundation
Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.
PBCRobertPartner1276 VotersPlease select one:
If you have replied, please feel free to say where in each region you are: e.g. UK, France, Canada, Namibia, etc... Thank you.
Hi I'm in Fife, Scotland.
Hi, I live in Fife too, diagnosed 3 years ago, would be good to chat
Dunedin ,NZ
Hi Robert, I,m from Durham UK
Hi there I'm yougatheart aka julie live in letchworth uk
I am from Phoenix, Arizona.
Evening I'm Manchester, England
Greater London, England
Hi, I'm from the usa
I am in Spain, Canary Islands. Just diagnosed April 21st, 2017
I live in Harlow, Essex UK
Hi! I'm from Traphill,N.C
Dunedin, New Zealand
Donegal Ireland
Hi I’m in Rye, England
Hi robert, live in cornwall uk..
Hi I'm in Newport south Wales
I live in Wiltshire UK
hi robert am in glasgow, scotland
Hi Anniebee, Im also from the Glasgow Im in the royston area
hi cathrine am in cardonald, govan area x
Hi Robert, i live in Merseyside uk.
I live in Glasgow, Scotland
Hi Jt, Im also from Glasgow Im in the royston area
I'm from NYC. Happy holidays everyone!
Hi, Bonnie, I'm from Minnesota
Hi Robert, I live in South Yorkshire. Have a very merry xmas.
Hi robert Im from Glasgow
Hi Robert i live in Derbyshire
Hi Robert -- I live in New York, in the USA ---
Hi, I'm Claire, I live in Letchworth in Herts...:-))
Hi, I live in Louisville, Ky. Does anyone of a PBC doctor here.
Find a good Gastrointerologist and then research him/her and set up an initial appt and interview him/her and see if you and the doctor are on the same page for your health needs.
I go to university of Louisville outpatient.. my specialist name is dr. Louise marsno! Try to get his appointment you will be amazed how he explains things! Good luck
Hi I live in Jersey in the Channel Islands
Hi I live in Redditch my son who is a sonographer lives on Guernsey his patients are lucky he understands PBC,not like ours in Redditch
Hi there, I'm in Surrey UK.
hi I live in surrey uk
Hi all I live in Skelmersdale Lancasire UK.
Hi I now live in Torbay but was born in Newcastle upon Tyne!
Hello Everyone.....I live in West Sussex
England, UK
Hi I live in West Sussex
hi i'm in suffolk uk
Romania - 6 patients identified here so far + 1 in the Republic of Moldavia.
i.m from Crieff in Perthshire then married and moved to Newcastle upon Tyne but now we are retired and live in Bath
i live in nsw australia any other aussies on this list
yes i live in Sydnay 10 years diagnosed how are you coping ? we have so little support in Australia
Hi Snoozy I know how u feel I'm in Melbourne and so frustrated with how little people know nor understand 
Hi. I live in Sydney too and was only diagnosed on 29/4/13. Haven't been told about any support groups in Sydney so this site is absolutely invaluable. Feel like I have learnt so much here already. I do have a lovely gastro though that is very understanding and knowledgeable.....as much as you can be with this unpredictable illness.
hi Skippy, where in Syd are you? im close to Liverpool. diagnosed 11years ago
Hi Snoozy....down near Sydney airport. Mascot.
i live in nsw australia any other aussies on this list
i live in nsw australia any other aussies on this list
i live in nsw australia any other aussies on this list
Hey I'm in melbourne
hi im ann from dublin ireland
Hi Ann, I am in Dublin too. How are you getting on with PBC?? Hope you are doing well.
hi, your the only person iv come across from ireland let alone dublin, and im on lodes of pbc sites, im not to bad since iv given up work couldnt do it any more, i find the joint and musle pain the worst, dont have much of the itch thank god, how are you, do you know of any groups that have chats ect. about pbc
Hi Ann, Nice to hear from you. My doc in Artane says he has me and one other patient with PBC. As you know its quite rare. Some days I have problems with everything. Tiredness, pain in joints as well as liver area and of course the dreaded itch. I was told to give up work as an employer would not be insured if anything were to happen due to PBC. No I dont know of any other groups that speak of PBC. In fact everyone I know has never heard of it as I hadnt before I was diagnosed. Keep well Ann. Up the Dubs!
Hiya Bobbyholly321
As I said to Ann, there, I'm from Co Down, Northern Ireland and I haven't come across anyone else from NI so its nice to 'meet' others from Ireland. I had to give up work due to other conditions, asthma, arthritis, depression, fibromyalgia, hiatis hernia, migraine, raynauds, sciatica, scleroderma, sjogren's, etc, so I've been unable to work for ages. While they were treating me for all that lot they discovered I had PBC, too. As you say, most people haven't even heard of it. Well, stay well, all the best, (
Hi girls lost of us in Dublin surround areas! I'm in Kildare! Support meeting in brooks hotel Dublin city centre once a month. Message back for more info. Grainne
Hi Ann
I'm from Co Down, in Northern Ireland. Haven't found anyone else yet from NI but its good to meet other people from Ireland. I've had PBC for about 6years. I was diagnosed in a July and my sister was diagnosed in the November of the same year. I'd never heard of this before I took it. The PBC Foundation in Edinburgh have been very helpful. I got a great book from them, entitled, 'Living with PBC' and its been very useful indeed. All the Best, Mags (
Hi Anne, Hope you are doing well. It sounds like you have some of the same conditions as me. Mine include...Asthma, Stomach Ulcers, Post herpital nueralgia (had shingles on my face 3 time) Arthritis in my neck, depression, Anxiety attacks and of course PBC. It was while doing tests for my other problems the doctors in the hospital discovered I had PBC. I just thought the pains in my hands at the time were writers cramp haha. I just had more blood tests done last week and the results were that my PBC is still the same, no better no worse. So I suppose thats kinda good. So far I am the only one in family to have this condition. I hope it stays that way as I wouldnt wish it on anyone. Yes, its lovely to hear from other people in Ireland. Stay well Anne and pass my best wishes on to your sister too. Take care...Yvonne X
Hi, Ann.
Have you joined the Foundation, yet? We do have extensive membership all around Ireland.
Yours,
Robert.
Hi, Ann, I'm looking for a local group to be part of. It amazes me that we left isolated with this disease. There are groups for everything nowadays but none for us, it seems. Wot givs?!!
hi ann i just found out i have pbc im from dublin and this is the only pbc site i could find how do i find out more about this condition thanks
I am Mary I live in Glasgow
I'm in Dallas, TX
Hi Doxiegal,
My name is Mary and I just got the news I have pbc and I am
from Cleveland, Texas. I have been to Dallas many times.
Hi I'm Jane and live in the UK (midlands)
i am in milton keynes
I am an hour north of Dallas, Texas, just across the red river into Oklahoma.
Hi I am from Raleigh NC USA
Hi Judy, I am Wendy Marie. I live on the coast of NC.Not only do I not know anyone with PBC, no one has ever heard of it or know what it is.
Hi , I am on the Gold Coast , Queensland, Australia. :)) Happily made contact recently with two other pbc women from new south wales.
Hi dizee, I am from Brisbane, I joined the site early this year and was diagnoised in 2012 as early stage 2. It was nice to see there are a couple of us in Queensland makes one feel less alone, if you would like to chat sometime feel free to reply. I have not posted anything before but find the info & strength of those on this site inspirationalx
Hi, I am in South Florida, USA
Hi, I live in Melbourne but originally from Newcastle upon Tyne UK, was diagnosed with PBC 23 years ago and still doing ok.
I'm in Dublin, Ireland
Ireland
I'm in Merseyside, UK
hi, im Ann. from KILMARNOCK,AYRSHIRE. SCOTLAND
hi, i'm Mark from West Midlands.
Hi i am Lynn ,and live in s Wales
Hi, I'm Mandy and I live just outside Glasgow
Hi, I'm in cheshire.
I'm in Co Down, Northern Ireland.
Hi, I am in the United States ....Michigan to be exact.
Hi I'm in Spain
Hi, im in lancashire
Hi I am in Nuneaton Warwickshire England
I'm in Scotland, just diagnosed.
I did a question post and Blog Post as I want people to know there's hope, please see the Blog Post with Links:
OBETICHOLIC ACID SAFE AND EFFECTIVE AGAINST PRIMARY BILIARY CIRRHOSIS.
I'll repeat the links here as there's a lot of unhappy people and this is good news and it may make things a little brighter:
2011.04.01 (01.04.2011)
news-medical.net/news/20110...?
2011.04.01 (01.04.2011)
USA Phase 2 Study
empr.com/phase-2-study-of-o...
2011.11.14 (14.11.2011)
to last update
2012.07.12 (12.07.2012)
USA Phase 3 Study
clinicaltrials.gov/ct2/show...
USA Phase 3 Study is currently recruiting participants
UK Medicines Information - New Drugs Online
ukmi.nhs.uk/applications/nd...
I hope this helps anyone reading it.
Hi, I live in a beautiful little village outside Swansea, South Wales UK
Hello .
I'm from Llandudno, North Wales. I was diagnosed October 2011 and don't know anyone else with PBC in this area.
Oak Hill Florida here
i am in Donegal in the North west of Ireland. I am happy to see other Irish people here - i don't feel so lonely now (obviously I am not glad that you have PBC but you know what I mean)
Hi I'm Chris from Locking Weston-super-Mare and feel very alone with PBC x
Hi I am in Spokane Washington, diagnosed 17 years ago and still kicking
Hi .I'm from Wakefield and I have Been diagnosed with pbc for about 10-years
i am in New Zealand - any one else out there???
Yep Dunedin
I'm in Utah USA, and was diagnosed about 4 months ago.
I am Wendy Marie. I live on the east coast of North Carolina in the states.
I live in GB in lancashire.
Hi, im from Aberdeenshire, Scotland. I have had pbc for 15 years. My younger sister (who is sadly no longer with us) also had pbc and had a liver transplant 17 years ago. It was not the condition that killed her.
hello.i"m eleni from grecce!!
From the U., S., of A., Milliary base Fort Polk area, Leesville, Louisiana.
Hi, I'm in Paisley, Scotland.
I live in Brasilia, Brasil.
Hi I live in a vilage near Nottingham.
Hello, I live in West Texas! USA
Hello I'm in Kent Uk
Hi I'm in East Sussex UK
Hi All, only just been diagnosed, feel quiet lonley but this site has helped lots.I live in Middlesex ,UK. Wish you all more happier days
Hi all, I am in Grimsby, N.E.Lincs UK
Hi I live in Pennyslvania USA
im in the uk
Hi, I am in New Jersey, USA!
Hi everyone. I'm from East Sussex UK.
Northern ireland
Hi, I am from Dumfries in Scotland.
Hi, I am living in Australia, but was originally from Kentucky, USA.
Hi I'm in Dublin ireland
Hi, I live in Basingstoke, Hampshire, UK
I'm from Belgium... looks like I'm the only one here...
North-East UK
Atlanta, GA - USA
Caithness, Far North of Scotland
hey all, I'm from Melbourne, Australia
Virginia. USA
Hi all, I live partially in Voerde, Germany and partially in London, UK
Hi I'm originally from York but now live in leeds.
Hi, I am in Dimondale, Michigan
Hi, I live near Chester, Cheshire
I'm from Florida USA.
Kathy from Fishers, Indiana USA
I was just there for my kids swim meet. From Chicago, IL USA
I'm from Saskatchewan Canada... 
Hi, I'm from horbury in Wakefield UK, been Diagnosed for 12 years now...no major problems
hi im in nsw Australia on a pastoral station on the darling river
Shropshire England
Hi I am Lexi-Img I live in Pittsburgh Pa
Hi, I am in Ayr, Scotland, UK and attend hospitals in Ayr ,Kilmarnock and Glasgow
Greetings! I am in New Hampshire, USA
I live in Alaska but from Ely England originally
Hello everyone - I'm living on the Isle of Wight - off the south coas of England
Hi I live in port talbot south wales uk would like to know anyone close with pbc as not come across anyone yet. Only had pbc for 1 year
Hello there, I`m in Santiago de la Ribera MURCIA Spain
From Solihull, West Midlands, UK Diagnosed almost 10years ago. (WOW! Ten years has gone fast!!!)
Hi Robert I live in Chatham Kent. UK
Hi, I'm in north east, UK
Hi I live on the Isle of Wight. Is there anyone else on here from the island? If so who is your consultant?
Hi I'm living in essex, uk
Hi , I'm in Toronto, Canada
Newcastle upon Tyne
Muncie, Indiana-USA
I am British living in the UK
Hi, I live in Fife, Scotland
I live near Preston Lancashire
uk wiltshire
I'm from London, Arkansas in the great ole USA. Diagnosed 2005.
I"m in Apple Valley, Minnesota, USA , near Minneapolis/St.Paul, MN
I live in Florida, USA
USA
Uk North Yorkshire.
Devon UK
India
I'm in Derbyshire, England
I am living in Ireland.
I am from WASHOUGAL, WASHINGTON IN USA
southeast England UK
From North East Of England...now living in East Anglia
Lincoln Park, Michigan USA
East Yorkshire.
Im in San Pedro Sula, Honduras
I now live in the South Hams of Devon - about 1 to 2 hours away from the nearest hospitals depending on the tourist traffic. I was living in Hull when I was first told I had AMAs - but PBC was never mentioned, and I just had annual LFTs for 12 years until told to stop as I would never develop anything.
However I was born in Stoke-one-Trent. I mention this as I know some of the studies on PBC have indicated that there is a regional variation in its incidence.
I am from Leicester but live in Buntingford in Hertfordshire. UK
Indiana, USA
West Yorkshire.
I live in Omaha, Nebraska. (USA)
Hi I live in Nebraska also. Have lots of family in Omaha.
Im in Alberta, Canada
Dolly67
Miami, Florida. Would like to hear from you guys. Newly diagnosed. 67 female, of course,
Roanoke (Dallas/Fort Worth), TX USA
From mountain grove, Missouri.
Bastrop, Texas
hi im in wicklow Ireland
Hi I live in Kendal , Cumbria UK
Hi, I am from East Ayrshire, Scotland
Hi, I'm in Norfolk England
Connecticut, USA
I live in the Isle of Skye. Lived in Renfrewshire when I was diagnosed with PBC.
Hi, I am from Alberta, Canada.
Hi, I live in Ayrshire,Scotland, never heard of PBC until this year, had tests nearly two years ago for other conditions, wasn t till this year after seeing a consultant for a check up for the second time, did I find out from my doctor what my liver was checked for, think she thought I d been told, I am not on medication which is good, but the fatigue and feeling unwell at times gets me down, as I work long hours in a stressful job. Nice to know I can come to site that I am not alone with this, never heard of before this.
Connecticut, USA
I'm in Kilkenny, Ireland
I'm in Kilkenny, Ireland
Hello I'm in USA. Titusville Florida
I'm in Stockholm, Sweden.
Australia
I live in Hampshire, Southern England
SCOTLAND
Is there anyone who resides in Connecticut USA that has been diagnosed with Raynauds and PBC?
I'm in the USA - Rhode Island
Hello, I am from Vermont, USA
UK
SCOTLAND
I'm in Portugal
England
Hi, Edinburgh, Scotland UK
England
Hi. I live in Keighley, UK
I`m bordering Lancashire/Merseyside. Diagnosed 2 years ago. Most days I feel great AND WORK 12 HOURS A DAY but i do crash out when i get home. I find i get really tired, almost feel drunk or drugged ! when i have eaten ????
US
i live in Cork,Republic of Ireland
Falls Church, VA, USA
North Wales UK
Hi, I'm Lesley from Northumberland
South Carolina USA
Melbourne, Australia.
Manchester, England
Hi I am in Ayrshire,Scotland.
Llandudno, North Wales
Alberta, Canada
New Mexico, USA
Memphis, TN=USA
Hi, I'm from Romania.
I live in Upstate, NY.
California, USA
Where in CA ? Not to many of us here
im in ca. Victorville area. You?
Hi I'm in Aberdare, South Wales, diagnosed almost 20 yrs ago
Hi I'm from Newcastle upon Tyne England
I'm in Mexico.
Birmingham, UK
Hi, I'm from Marietta Georgia, USA, home of Gone with the Wind. Have had PBC for about 15 years. I am now in end stage on the transplant list.
Hi, I'm Memom. I live in Pennsylvanna, USA
Texas-USA
Hungary
Aim from Worcestershire U.K.
Arizona, US diagnosed September 2015
North of Toronto, Canada
Regarding where in the world are you... I am an American, temporarily in Europe (Germany)
Hi, I'm in West Wales, UK
I am in Melbourne Australia and have a Website and support group for Aussies. pbcaustralia.org/
Doreen Donaldson
North Yorkshire coast
This is Kira from Chattanooga Tennessee.
I'm South Carolina, US
South Carolina, USA
I am a 57 year old female with PBC and Sjogrens, living in Johannesburg, South Africa. Would love to make contact with other SA PBC sufferers.
UK. North Yorkshire coast.
Litchfield Park (Phoenix), Arizona US
Connecticut, USA
From London UK
I'm in Donegal Ireland
Hi. I live in Christchurch, New Zealand
I am in London England
London ,England
Hi I'm in Louisiana USA
Washington, DC area
Galway Ireland. A strange notion here of war of the worlds/ the day of the triffids scenario if that makes any sense? It's probably me still feeling a little disconnected from the truth! But somehow we are all a community. I really welcome that.
Huntington Beach, California, USA
Hi, I live in Jersey, Channel Islands, UK ( I think ) I was diagnosed 14 years ago - I am 76 this year - 2017
Hi, I'm in Rochester, New York, USA
United States Fresno CA
Hi , I'm in south Lincolnshire, uk
Victorville, California
London, UK
Whitby, North Yorkshire
I'm originally from Prague, Czech Republic, but now live in Scotland (Dum&Gal).
Australia
I LIVE IN ABERDEEN UK
ABERDEEN UK
England
Norman, OK, USA
Southern Indiana, USA
Hi Robert, I'm Julie I live in Luton Bedfordshire uk .had p b c for 7 yrs
I'm in Kentucky USA
Southern Indiana, USA
Minnesota
Spain
Staffordshire UK
Kentucky, USA
California, USA
Crossville,Tennessee,United States between Knoxville and Nashville. Also lived Alabama, Falls Church, Virginia
Los Angeles, CA
Hi I'm in Locking Weston-super-Mare
FROM MEXICO
A SMALL TOWN CALLED DOLORES HIDALGO, GUANAJUATO , MEXICO
Michigan - USA
Nederland
Melbourne Australia. Diagnosed 2007
Ireland
I'm Kansas, USA.
My name is anne from county longford ireland
Aloha All! I’m from Hawaii - USA. Dx 3/26/18.
New Zealand
Hi there - I’m in Santa Monica, California
Currently in Boca Raton, Florida but over the last 12 years we’ve had to move from Fort Lee, New Jersey to Santa Monica, California for weather-related reasons due to Fibromyalgia and then to Boca Raton 3 years ago.
I live in UK thanks Lorna
NortherN VA, DC area, USA
I live in Greece 🇬🇷
Southern California
North West England
Nottingham, Uk
Vancouver, Canada
Hi. I'm from Enfield in London, uk
I'm from Jonesborough, TN
Ohio USA
Ohio USA
I live in New Zealand
Kings Lynn, England
Hi, i'm in London, UK
Hi, I live in Northern Ireland.
Texas
Hi I’m in Aberdeenshire, Scotland newly diagnosed
Miami, FL
Ohio usa
Canada
Hello Robert! I live in the United States in east Texas. I am new to this website, and besides PBC, have many other autoimmune diseases.
Hi, I live in Germany
Blackwood South Wales
Glasgow scotland
Glasgow scotland
St Paul, Minnesota
I live in Harlow, Essex.
I’m in Suffolk, UK
Hi I. In Wales Great Britain
Hi, I am from Essex in England 🙂
U.K. STANMORE, Middlesex
Tampa, Florida
UK Birmingham
Saltdean, England
Hi. South East London. UK
Hi north west England, Lancashire.uk
Yorkshire UK
France 🇫🇷
Shefford, Bedfordshire
I am in Glasgow
Lincolnshire
Hemel Hempstead uk 😊
Aberdeenshire Scotland
I’m in blenheim nz
UK
Uk
California
Hi, I'm in Oxfordshire UK, just been diagnosed on 11 December 2019.
Dear Robert,
I am from Germany and am already a longtime member of this group.
I also am a member of the American PBC group, noch groups I share since my diagnosed PBC in 2003.
Currently I am doing very well thanks to combined medication: Ursodeoxycholacid, Budesonid low-dose and Bezafibrat.
I learned a lot sharing your group and the American PBC group. Thank you indeed so much for giving us this opportunity, it is more information than you can ever get from your doctors.
Take care of yourself as you are precious to us!
Hi I'm in the Isle of man
Connecticut , 🇺🇸
I accidentally voted "the Americas" because I didn't see USA/Canada as an option. I'm in the USA, Utah. But what exactly do you mean by the "Americas" if the USA and Canada are their own catergory?
Tipperary Ireland
Uk
Michigan
Female. I live in Newfoundland, Canada. I was diagnosed 21 years ago.
Belgium
USA
Ireland
BRASIL
born in scotland but now in south west england
Fife scotland
Hey 👋 I’m from South Carolina, USA. Was just diagnosed in July 2020. I got a 2nd opinion in December 2020 after liver biopsy to confirm. i had never heard of PBC, heck I have trouble pronouncing the full name🤣
I’m in the USA. Alabama to be exact.
Newly diagnosed in August 2020 and I'm in Monaghan, Ireland.
Wicklow Ireland
Tampa, Florida
Hello🙋♀️...I'm from KS. USA
I'm in UK Sunderland
Connecticut- US
Beverley in uk
I’m in Essex England
Hiya, I'm from Nottinghamshire, UK.
Moray Scotland
Torbay in South Devon
Northumberland UK
Norfolk, 'Great' Britain (sadly no longer EU)
Berkshire UK
I am in Turkey
Hi everyone, I was diagnosed with PBC at the beginning of 2020. I live in Scotland.
hi I am in Stirling Scotland
Hi, I'm in Australia.
Minnesota
Melbourne, Australia
hi uk
Vienna, Austria
Hello. From Germany, Sauerland
Hello from Catalunya (Spain) !
US
I live in Essex, England
In South Africa
