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Pernicious Anaemia Society

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New to me

Does anyone use this.I've not had it before. I'm used to Rotexmedica Accord and gerot snd lannoch , Mostly. All hydroxcobalamin . Thanks

Does anyone use this.I've not had it before. I'm used to Rotexmedica Accord and...

Nackapan

•12 hours ago

4 Replies

Self Injecting Query

I posted earlier about my health problems over the past two years. I saw an old post that said if you have Neuro symptoms then you should get loading doses...

I posted earlier about my health problems over the past two years. I saw an old ...

Sparklingsunshine

•15 hours ago

4 Replies

Reversing Out

Good day friends. I need some help and advice. I was diagnosed with autoimmune atrophic gastritis, I have started EOD B12 injections about 1 month ago. My...

Good day friends. I need some help and advice. I was diagnosed with autoimmune ...

Canadian77

•17 hours ago

4 Replies

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How Do you Know When You're On Enough B12?

I'm normally on the thyroid forum but have posted on here a few times and I would value your expertise. Sorry for the magnum opus post 😁 I've been on B12...

I'm normally on the thyroid forum but have posted on here a few times and I woul...

Sparklingsunshine

•18 hours ago

11 Replies

Neurology appointment

I have an appointment with a neurologist on Wednesday and not sure what to expect. I SI weekly but my symptoms seem to be worsening. I have bad anxiety,...

I have an appointment with a neurologist on Wednesday and not sure what to expec...

Inishfree

•21 hours ago

1 Reply

How long before vitamin B tablets out of system to take blood tests

My son had some blood test taken privately. Was supposed to be Active B12 and MMR folliwng borderline serum B12. The results came back middle of the range and...

My son had some blood test taken privately. Was supposed to be Active B12 and MM...

Hectorsmum2

•23 hours ago

Be the first to reply

Hi, I'm sure it's been answered before,but can't seem to locate...is it OK to test for I.Factor after loading doses please? If not why?

Hi, I've had one Intrinsic factor test before which came in under range. I know its a test that can take a few times to show up.pisitive & kick myself for not...

Hi, I've had one Intrinsic factor test before which came in under range. I know ...

Jo5454

•2 days ago

5 Replies

Vit D, pearls or capsules ?

Just wanted to pick brains,,, daughter still not well managed to get last B12 jab little earlier now they have agreed to 8 weekly. She was also vit D def, px...

Just wanted to pick brains,,, daughter still not well managed to get last B12 j...

Polo22

•2 days ago

9 Replies

Is it Supplementation or just life?

This dilemma was better expressed by someone else on this forum. As often happens something resonates and I mull it over and can not give credit where credit...

This dilemma was better expressed by someone else on this forum. As often happen...

WIZARD6787

•2 days ago

3 Replies

B12 Def + Porphyria possible connection!

Hello Friends, My porphyria symptoms showed up about 15 years ago when I suddenly became "allergic" to the sun. Symptoms include digestive inflammation,...

Hello Friends, My porphyria symptoms showed up about 15 years ago when I sudde...

GracePV

•2 days ago

4 Replies

Infusions

Can anyone tell me if you can have B12 infusions, similar to iron infusions I suppose .Thank you.

Can anyone tell me if you can have B12 infusions, similar to iron infusions I su...

36Hele

•2 days ago

15 Replies

One Year Later 😁

Hi Guys I was doing my journal tonight and I thought I would look at last year same date: “20/4. V tired and sleepy despite good sleep. Aches extending...

Hi Guys I was doing my journal tonight and I thought I would look at last year ...

Wwwdot

•2 days ago

27 Replies

Any POSITVE stories of healing after severe reversing out please... ( like coming out the other side 🙏🏼💕🙏🏼)

Hi there, Does anyone have any POSITIVE stories of healing after reversing out please? I am in the absolute thick of it, and need something to hold me up...

Hi there, Does anyone have any POSITIVE stories of healing after reversing out p...

Suffering_sunny

•3 days ago

40 Replies

Gastric parietal cell antibodies OR IFAB? Do I need both??

Hi there, I tested negative for GPCA, but I haven't done IFAB. Having done GPCA, is that enough? Should I also do IFAB? I am on eod si injections, but for...

Hi there, I tested negative for GPCA, but I haven't done IFAB. Having done GPCA...

Suffering_sunny

•3 days ago

4 Replies

Good news on memory following B12 treatment

Hi, some of the regular posters may remember me posting in absolute despair last autumn about my husband’s cognitive issues and extreme memory loss. I’m now...

Hi, some of the regular posters may remember me posting in absolute despair last...

Zmalp

•3 days ago

17 Replies

Elderly relative ignoring my advice re B12.

I wonder if others on this forum have a similar problem and can help. My MIL is 91 and has some symptoms of B12D, Which could be put down to 'old age' but...

I wonder if others on this forum have a similar problem and can help. My MIL i...

charks

•4 days ago

26 Replies

Polyneuropathy.

I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my...

I treat my polyneuropathy with B6 and B12. GracePV shared their experience wit...

WIZARD6787

•4 days ago

8 Replies

Betaine HCL

Good day Friends. I am considering trying Betaine, I have Autoimmune Gastritis. Have been having what I think is gas pain, it can be in left chest, upper...

Good day Friends. I am considering trying Betaine, I have Autoimmune Gastritis...

Canadian77

•4 days ago

8 Replies

Has anyone experienced foot drop from b12 deficiency? Has anyone had spinal lesions also?

interested to know if anyone has experienced foot drop and had mri scan showing lesions? I’m currently under investigations and know of two on my spine and...

interested to know if anyone has experienced foot drop and had mri scan showing ...

Sausagedoglover1

•5 days ago

16 Replies

hashimotos and b12

hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member...

hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble...

Rowing2

•5 days ago

5 Replies

PA/stomach pain

Hi all, I’m so grateful for all of your support as I’ve started down this road. Got diagnosed with PA/AIG in the fall via an endoscopy. I am on B12...

Hi all, I’m so grateful for all of your support as I’ve started down this road....

Lhood08

•5 days ago

12 Replies

versandApo order

hi, Ordered b12 ampoules from above site (have ordered before and arrived quickly). Order was placed 10th April and haven’t received yet. I messaged them and...

hi, Ordered b12 ampoules from above site (have ordered before and arrived quick...

Fluffyone

•5 days ago

5 Replies

2023 research 👉

Some might find this artical of interest....... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10305463/

Some might find this artical of interest....... https://www.ncbi.nlm.nih.gov/pm...

Jillymo

•5 days ago

12 Replies

Versandapo Panpharma B12 available ?

I have had 3 emails from Versandapo alerting me Panpharma is now in stock. Each time I go on their site and check it says currently out of stock ! I’ve been...

I have had 3 emails from Versandapo alerting me Panpharma is now in stock. Each...

Ryaan

•5 days ago

9 Replies

Hoshimitos thyroiditis

Hi All, I am new on here with newly diagnosed pernicious anaemia. I had the standard 2 weeks of injections and after that course felt fantastic energy wise...

Hi All, I am new on here with newly diagnosed pernicious anaemia. I had the st...

Tigger999

•6 days ago

7 Replies

B12 injections stopped by gp after 5 years treatment on nhs

I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve...

I was diagnosed with chronic b12 deficiency years ago - my GP started giving me ...

LaraPA

•6 days ago

14 Replies

Daily Magnesium intake?

I'm curious to hear about others Magnesium daily intake and experience of taking it. It was one of the first pieces of advise somebody anecdotally told me...

I'm curious to hear about others Magnesium daily intake and experience of taking...

MartynLewis

•6 days ago

5 Replies

Serum folate 7,(3.1-20.1) completed loading dose, being retested in 8 wks, is it best to take folic acid now, or wait for re-test please?

Hi My folate is lower in range and I was discussing red cell folate test (thank you FlipperTD!)as a way of checking folate privately. I am now wondering...

Hi My folate is lower in range and I was discussing red cell folate test (thank...

Jo5454

•6 days ago

Be the first to reply

B12 - a hidden inflammation trigger

I found this of interest. When I were diagnosed both my ESR and CRP were both above range when tested and still are !........

I found this of interest. When I were diagnosed both my ESR and CRP were both a...

Jillymo

•6 days ago

28 Replies

Expired needles and syringes

I've never noticed this before but just spotted expiry dates on needles and syringes. Is this really a thing? Is it like a best before date or a strict use by...

I've never noticed this before but just spotted expiry dates on needles and syri...

Clare184

•7 days ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

New to me

Self Injecting Query

Reversing Out

How Do you Know When You're On Enough B12?

Neurology appointment

How long before vitamin B tablets out of system to take blood tests

Hi, I'm sure it's been answered before,but can't seem to locate...is it OK to test for I.Factor after loading doses please? If not why?

Vit D, pearls or capsules ?

Is it Supplementation or just life?

B12 Def + Porphyria possible connection!

Infusions

One Year Later 😁

Any POSITVE stories of healing after severe reversing out please... ( like coming out the other side 🙏🏼💕🙏🏼)

Gastric parietal cell antibodies OR IFAB? Do I need both??

Good news on memory following B12 treatment

Elderly relative ignoring my advice re B12.

Polyneuropathy.

Betaine HCL

Has anyone experienced foot drop from b12 deficiency? Has anyone had spinal lesions also?

hashimotos and b12

PA/stomach pain

versandApo order

2023 research 👉

Versandapo Panpharma B12 available ?

Hoshimitos thyroiditis

B12 injections stopped by gp after 5 years treatment on nhs

Daily Magnesium intake?

Serum folate 7,(3.1-20.1) completed loading dose, being retested in 8 wks, is it best to take folic acid now, or wait for re-test please?

B12 - a hidden inflammation trigger

Expired needles and syringes

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive