Feeling washed out!

[davina70]

Just diagnosed also have Addison’s and thyroid diseases had 3 injections this week same next week then 3 monthly ...feeling washed out is this normal please?

[Nackapan]

Sometimes you can feel worse before any improvements .

[Jane01]

I have Addisons , PA, and thyroid disease too. When I started b12 injections I had to stress dose the cortisone and treat it like sick day rules. It gets better and easier as you go. I don’t stress dose now.

[davina70 in reply to Jane01]

Thanks Jane feeling better this morning but will take your advice

[Sleepybunny]

Hi,

A lot of people report symptoms worsening for a while before they start to get better.

"feeling washed out"

Has GP checked your potassium levels?

Some patients can experience a drop in potassium levels when they first start B12 treatment.

If you have neuro symptoms then my understanding is that you should have loading injections every other day until symptoms stop improving then an injection every 2 months .

GP can find the info in their BNF book Chapter 9 Section 1.2 or in BNF link below.

There is an increased risk of permanent neurological damage inluding problems with spinal cord if a patient is untreated or under treated.

Neurological Consequences of B12 Deficiency

PAS news item

pernicious-anaemia-society....

PAS article about SACD, sub acute combined degeneration of the spinal cord

pernicious-anaemia-society....

UK B12 documents

BSH Cobalamin and Folate Guidelines

b-s-h.org.uk/guidelines/gui...

BNF Hydroxycobalamin

bnf.nice.org.uk/drug/hydrox...

NICE CKS

cks.nice.org.uk/anaemia-b12...

Each CCG/Health Board/NHS Hospital Trust in UK is likely to have its own local area guidelines on treatment/diagnosis of B12 deficiency.

I suggest you track down the local guidelines for your area of UK and compare the local guidelines with the above documents.

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

Point 1 is about under treatment of B12 deficiency with neuro symptoms.

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

Link about "What to do next" if B12 deficiency suspected or newly diagnosed.

b12deficiency.info/what-to-...

I wrote very detailed replies in the thread I've linked to below with lots more B12 info which you may find helpful.

healthunlocked.com/pasoc/po...

I am not medically trained.

[Ctadds1]

If you don’t mind me asking, how did you discover you have Addisons? How were you diagnosed?