Hi I'm Laura in UK, I've been left to suffer with the b12 deficiency for a few years now, I had to fight for a few years to get blood tests!! And I've been left with depression, balance problems, eyesight problems, extreme constant fatigue, ulcers, pins and needles and numbness, confusion, hair loss, etc etc. I've always been anaemic and suffer badly with bit d deficiency too. I believe it's all from a gastric band which wasn't done right, and after years of agony it was removed and it was found that the band had been cutting off the blood supply to part of my stomach!!
My GP has given me my course of 6 initial b12 injections but has not intention of keeping them up and gave me tabs instead which we all know only a tiny % is absorbed. I feel cheated as I knew something was wrong for years, now it's been proved and they don't care!!
I've seen posts on here you can order the b12 injectable from Germany, could someone tell me exactly what it's called and the dose etc please, and where I can buy the syringes from please, I'm desperate not to go downhill even further xx
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Louloulou72
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I’m sorry to hear your story. You are not alone in feeling robbed or cheated. I’m new on here and one of the extremely knowledgeable people will no doubt help you with that xxx
The 6 injections are called loading doses and it is possible that after the loading doses tablets will be sufficient to maintain your b12 level.i have PA and hashimoto's and have injections every 8 weeks.there is also a sublingual spray you can use.x
What you are describing are neurological symptoms and as such your GP should be giving you injections every other day until there is no further improvement. B12 injections are very cheap and I have never understood why GPs are so hung up on injection regimes that dont work for people. It would be worth showing them the guide lines.....
You can buy the vials, needles and syringes. Many people self inject. I cant remember where you get them from but do search through the posts as the sources will be listed. I used to buy mine but finally got what I needed on the NHS.
Sorry Im not of more help. But please take heart you can sort this.
Am sure someone will come along and advise you of the sources if you cant find them in other posts.
I don't think it should, as one can buy from canada and the Philippines. I order a 100ml 3000mcg from the Philippines. It lasts over a year for me and my wife and daughter.
SPIDERPATS this forum does not recommend the use of powder that needs to be reconstituted because of the possibility of contamination with bacteria and whatever else.
That's dangerous. You cannot guarantee that you're not contaminating the solution with bacteria and fungal spores that can grow in there. Not the sort of stuff you want to be injecting.
My wife is absolutley amazing, she not a regular nurse, actually quite high up & knows her field. Its only people that rely on doctors that are scared to look after their own health. Whilst I appreciatecyour concern its our health and we mind it VERY well. Kind regards.
I've just bought another 100 ampoules to avoid any possible Brexit chaos. I described the process and I've just posted that description.
There will be problems from Jan 1st for several months. Our idiot government just haven't got the procedures in place for a no-deal Brexit. I doubt they have procedures in place for any deal they may be able to cobble together.
I have enough B12 (including my NHS stuff) to last me until August 2021. And I would hope that the worst will be over by then. But I wasn't going to take any chances so I'm now OK until the end of 2022.
I really would recommend others that rely on self injecting to panic buy now and get enough to last a year.
Lots of B12 info in my replies on the the thread below eg symptoms, causes of B12 deficiency, more B12 books, B12 websites, B12 articles/documents etc.
UK forum members have reported problems getting their B12 jabs during pandemic eg injections have been stopped/delayed/ frequency reduced or swapped for oral tablets.
I left a detailed reply about impact of pandemic on B12 treatment in UK in next link which might be of interest if you're UK based.
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