Where can I get my b12 injection

My g.p or his nurse are withholding b12 injections due to the corona virus.I must say I am a bit worried saying that I have been having these every 3 months.When I questioned what if I feel I'll as a result they said phone 111.

[Nackapan]

I would phone 111 and say you ate I'll ad been denied a vital injection

[Hidden in reply to Nackapan]

Thanks for the advice.

[Nackapan]

My daughter is in the same position but has not been I formed . Surgery shut. Noone picking up the phones. Or on hold for 50 minutes to no avail. She is poorly now 8ve told her ti phone 111 . Its appalling

[Hidden in reply to Nackapan]

Thanks for the advice..

[Gambit62 Administrator]

link to advice on the PAS website

pernicious-anaemia-society....

[Hidden in reply to Gambit62]

Thanks for the advice.

[Sleepybunny]

Hi,

Have a look at these two links which both have ideas on what to do if jabs cancelled because they are seen as non essential during pandemic.

From PAS website

pernicious-anaemia-society....

From B12 Deficiency Info website

b12deficiency.info/blog/

[Lurcher-lady in reply to Sleepybunny]

If they’re non essential, they why are they as the NHS giving them in the first place? Do they think all B12d patients are stupid? Have they stopped giving insulin too? I doubt it!

[Hidden in reply to Lurcher-lady]

Thanks for your reply.

[Hidden in reply to Sleepybunny]

Thanks for the advice.

[Aurora12]

My surgery's 1st response when I went to book appt. was ...." You can only have it if you're symptomatic".

I asked - How long do we have to go without? There's a reason why we're on them for life.

Ans: Not known.

I said, without them, indefinitely, I WILL always be symptomatic!

Last year, I FINALLY took a p/copy of the BNF page in to surgery and got GP to agree to TWO monthly, after all the arguments re: peripheral neuropathy, 9 years after eventual diagnosis, [My previous surgery didn't assess me or ask any Q's - would only apply the 3 mthly "one size fits all" policy, as this surgery did initially!]

Even with TWO monthly, I still, permanently, get OCCASIONAL numbness and pins/needles - within first month of jab, though there's a definite improvement over 3 mthly! The damage has been done.

Clerk took advice and then said - if I pass verbal screening, I can have it.

She asked all the appropriate Q's re: out of country/ any cough/fever, any in household with symptoms, etc., which I passed.

As I usually book 3 weeks in advance, she said I'd have to ring again to be rescreened AT the time - unless their policy changes meantime??

[Sleepybunny in reply to Aurora12]

Hi Aurora12,

Mighty be worth expressing any concerns in a signed,dated letter to GP referencing information from the two links in my other thread. Keep copies of any letters written.

Unhappy with Treatment (UK info)

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

CAB NHS Complaints

citizensadvice.org.uk/healt...

If there are further problems , you can then refer to letter written previously.

May also be worth contacting your local MP if problems continue.

[Aurora12 in reply to Sleepybunny]

Thank You, Sleepy Bunny! I'll wait, first, to see IF I get it in a few weeks time.

No doubt they'd suggest that .... in the current climate ... I'm being OTT if I complained at this stage? No consistency between surgeries in my locality!

I actually feel like bringing a few matters to Partners' attention, so may approach PPG to get them discussed at a future meeting.

Thanks Again!

[Hidden in reply to Aurora12]

Thanks for your reply.I too get numbness/pins and needles/forgetful/amongst other symtoms.

[Cherylclaire Forum Support]

Seems very recently that some people are getting lessons in self injection from their nurses and then having B12 and equipment on prescription to continue own treatment at home.

Might be worth asking surgery about this as an option - if you feel able to try it ?

Good luck, Hidden - and keep well.

I remember how often I picked up infections and how difficult healing was, before I was found to be deficient- and how long it took to improve, even after injections started . Not willing to go back to those days, and wouldn't expect to be asked to. Which is why I eventually started self-injecting.

Have a read of Sleepybunny 's links to see if there are any other options worth considering for you.

[Hidden in reply to Cherylclaire]

Oh thanks for that I was unawre.

[Nackapan]

Yrs I've recently managed to get b12 on prescription to do some at home. Not easy.

Alot of surgeries do teach you to do IM too

.some give you a prescription and you have to take tour b12 to the nurse to inject.

They wouldn't teach Sc or give sc well not so far.

I've yet to actually receive the prescription.

Meanwhile I've been called to seeif I'm well then go in one at a time to a masked gowned nurse.

I've also recently taken the plunge and got my own supplies and I've done one SC at home.

There is no way I'm going backwards. I've still a long way to go .

Written letters have always got more attention as cant be ignored and have ti be scanned on your notes.

I chose to see a partner instead of my normal Gp. Second opinion really On symptoms. He within minutes was prescribing a heavy drug used for seizures and schizophrenia. I idnt accept.

Back fired as he was questioning my b12 regime. An upsetting consultation.

I didnt actually go for that. So partners not always any more informed than salaried Gps. If you write to the one you can trust they have to discuss it with the team anyhow.

The initial answer was no twice to injecting at home IM orSC.

You have to push . In this current climate I imagine they will want patients to self inject if you willing to do it.

We dont need the stress !

[Hidden in reply to Nackapan]

Thanks.I will phone them tomorrow.

[Hidden in reply to Hidden]

I rang my surgery today and they will not give out scripts for b12 and said to buy suppliments.Not sure how you can absorb these if you can't absorb it From your diet.thanks everyone.