Hi, I’m new on here.: I was diagnosed... - Pernicious Anaemi...

Pernicious Anaemia Society

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Hi, I’m new on here.

Dragonwalker profile image
3 Replies

I was diagnosed with low B12 and no intrinsic factor (so I presume pernicious anaemia) last October. I’m 73, so age is a major factor here. I’ve also used proton pump inhibitors for some years, had eating disorders and have other auto immune disorders and been vegetarian for over 40 years, so no great surprise really. 😊

My GP is a pain. Says he has loads of people coming to him saying they need jabs more often and it’s all in their heads. I’m about to join their tanks. I reckon my loading dose lasted about 7 weeks before symptoms returned. I’m shocked to find so many here have had the same experience or much worse.

I’ve been given four doses plus syringes by a friend who self injects (from the recommended German site) and I’ve watched the Utube videos. All it takes now is the courage........... Like others, I’m scared of hitting a major blood vessel - or my femoral nerve.

I read up on B12 patches and see that they don’t work for about 50% of people but I thought it was worth a try for £15 something plus postage for six (weekly) high dose patches. I’ve used one and THINK I might be one of the lucky ones (nothing dramatic but noticeable - brain fog cleared as if someone had drawn back a net curtain) and will post again with a link if successful. If not.......

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Dragonwalker
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fbirder profile image
fbirder

Have you tried oral B12?

It may be that you are deficient partly because of your diet and that tablets may boost you levels high enough.

ACritical profile image
ACritical

You could do it subcutaneously, in your tummy. No pain whatsoever. Keep distance 2 inch distance from bellybutton area. Inject on a 90degree with short needle or 45 degree angle with normal size needle. Prepare what is needed. Be careful, be hygienic, wash hands, break ampoule with clean wipe so not to cut yourself, clean area with antiseptic wipes, I use 2 needles, one for drawing up the liquid and the other for injecting. Do it slowly. Have a plaster handy just in case. You can see it on Utube, put in search engine...subcutaneous injection ...

First time is a bit scary, sit down in case you feel faint from being a bit scared. Have someone there with you might help. Some people prefer to do the first injection under supervision of a trained nurse. That was no option for me, watched a few utube videos used common sense and went for it. I hope you find the right solution for you. Let us know how you got on.

Dragonwalker profile image
Dragonwalker in reply to ACritical

Thank you. I might try that.

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