Help

[Kgg1960]

I was diagnosed with lupus, dermatomyositis, connective tissue disorder, ra, hypothyroidism, and I am about at the end of my rope.

I am on 1500mg cellcept 2x daily

250 mg plaquenil 2x daily

2.5 mg prednisone 1 daily

Levothyroxine 100 mcg 1 daily

I am on b12 shots my hemoglobin was 9.3

Please help me

I still stay exhausted, low appetite, weight loss, hair loss mouth sores even doing the magic mouth rinse

What should I do?

[clivealive Forum Support]

Are you in the U.K?

Do you know what your Folate level is Kgg1960 ?

It is also important that your Folate level is monitored as this is essential to process the B12.

There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another so the three must always be in balance.

Symptoms of a folate deficiency can include:

symptoms related to anaemia

reduced sense of taste

diarrhoea

numbness and tingling in the feet and hands

muscle weakness

depression

Folic acid works closely with vitamin B12 in making red blood cells and helps iron function properly in the body.

What frequency of B12 injections are you on?

Some of your symptoms are also similar to B12 deficiency and your lupus and thyroid problems put you at risk of developing one.

I am not a medically trained person but there are others on here who will be able to give you good advice.

[Kgg1960 in reply to clivealive]

I live in the USA

[Gambit62 Administrator]

how frequently do you have B12 shots?

[Kgg1960 in reply to Gambit62]

Right now once a week, but I get my last one tomorrow then see my hematologist on the 19th to see what the results are.

[Gambit62 Administrator in reply to Kgg1960]

sounds like you are just in the process of receiving loading doses - if you had anaemia that will take a couple of months to clear so may be that it is just early days.

[Kgg1960 in reply to Gambit62]

I hope so

Thank you fr responding

[Marz]

You mention you are Hypo and on 100 mcg Levo daily - do you know if you have Hashimotos as some of your conditions are auto-immune related and could be connected. I have Hashimotos and know from years of reading and learning from others there is quite a lot we can do to help ourselves .... so will await your reply before commenting further

Oh Ferritin - do you know your level ?

[Kgg1960]

I've never been diagnosed with Hashimoto

My ferritin level was 934 which stated it was high, this was on September 5th