The Fog

[Frances55]

Can someone explain to me what the fog is...I see a lot of you guys suffer it... I might suffer it but I'm not sure... Thanks...

[pvanderaa]

The feeling for me is not being able to think clearly.

But it is also like a depression. I feel like everyone is talking at once. Group settings are horrible and i want to isolate myself. I think i lose my spacial awareness of where sound is coming from.

[Frances55 in reply to pvanderaa]

Thanks for your reply ☺... Yeah I think I had those symptoms a lot before I started my injections.. I had my 6 loading.. and now on my every other day for the past week.. still not quite there yet.. but definitely 70% better... If it continues I'm expecting a full recovery from my neurological symptoms... I really hope you can get to a place with this horrendous illness where you can see some light at the end of the tunnel ☺.. I never thought 5 weeks ago I could feel so much better.. so don't give up hope... all the best...

[pvanderaa in reply to Frances55]

Do you keep a logbook of all your symptoms with some sort of severity score of your own choosing?

This helps with the short term memory loss and allows you to assess how your roller coaster ride is going and see progress in that the peaks get lower and the valleys fill in.

[Frances55 in reply to pvanderaa]

I keep a diary of day to day wellness... how I slept.. how I'm feeling when I wake up.. at what times I have a episode.. what the episode is.. and how long it lasts... and thanks for your advice ☺....haven't had two days at a time without a episode.. only one here and there.. that's got to be a improvement on none... one day at a time... All the best...

[Frances55]

Definitely did suffer from the fog.. and still have wee bouts... it's very scary.. I think my injections are working.. I wish you all the best for the future with this condition...

[Lisahelen]

The fog for me is exactly as Eaoz describes.

[clivealive Forum Support]

Walking into a room and wondering why I went there in the first place.

It's little wonder that B12 deficiency is confused with dementia - or is it the other way round?

[spacey1]

I lose names of objects, and worse, people. I'm pretty healthy, and manage a full time job, but sometimes I lose the thread in meetings and have to work incredibly hard to catch up with the conversation. It does make me appreciate the days when my thinking is clear and I can formulate a nice, crisp reply with al my words in the right order!

[Frances55 in reply to spacey1]

Same here... I've not long been diagnosed so got a wee way to go yet before I'll know if and what will reverse... I wish you all the best in your life.. And hope you'll get more and more clear days ☺.....

[fbirder]

Yup, that was me.

[Frodo]

"Brain fog" is a horrible, horrible condition which creeps up on you bit by bit, and you only fully realise how bad you were when it goes away and you feel normal again. I was doing a lot of writing as my symptoms worsened badly, and I struggled to formulate a simple plot outline for several years - and remember words - I truly thought I was going insane. After several injections, I wrote a 20k piece easily in a weekend and it all made perfect sense. However, I still go in and out of being clear headed and foggy. The really scary thing is that I remember this starting when I was 14. The other, related, scary thing is that it is not really taken seriously by doctors as a symptom and is likely to be put down to stress and overwork, and if those don't apply, age and hormones.