Loading B12 injections: Hi guys I've... - Pernicious Anaemi...

Pernicious Anaemia Society

31,915 members23,045 posts

Loading B12 injections

Ndobins profile image
8 Replies

Hi guys

I've been self injecting now for nearly 3 weeks, every other day. ( nurse did first one) dr has prescribed monthly for 3 months. My level was 162, does anyone have thoughts on when I should see some improvement ? I'm taking folic acid, and all other levels are good. Ferritin is 63, I have UAT which I take 125 mcg of Levo for.

Symptoms are : fatigue , forgetfull, headaches, dizzy, low mood, tinnitus ,breathless and general weakness . Intrinsic factor was negative , i eat fish and eggs and a normal diet.

Thank u

Written by
Ndobins profile image
Ndobins
To view profiles and participate in discussions please or .
Read more about...
8 Replies
fbirder profile image
fbirder

Unfortunately, we are all quite different in the speed of response. Some symptoms should go fairly quickly. I found that my fatigue levels are the best indicator of how my levels are. When I had my loading doses it was fatigue that improved first. It was also the symptom to first return after a month.

Best advice is to see how it goes with monthly jabs, and ask to increase the frequency is symptoms start getting bad again before the 4 weeks are up. Keeping a diary of symptoms vs treatment really helps to get a good idea as to how things are progressing.

Ndobins profile image
Ndobins in reply to fbirder

Thank u.

My plan was to keep doing every other day for now. The fatigue is just the worst thing , :)

fbirder profile image
fbirder in reply to Ndobins

That sounds like a good plan.

jade_s profile image
jade_s

I whole-heartedly agree with keeping a log. In my case, I've found that balance and weakness issues were the first to disappear (within days of starting treatment), and the first to come back when I (try to) skip an injection. Fatigue has taken much longer to resolve but has very, very, veeeeery slowly gotten better. Memory is still shot. Been at it nearly 2 months now.

As you probably know, many of those issues can also be due to low thyroid levels too, making it difficult to figure out what's what.

Ndobins profile image
Ndobins in reply to jade_s

Yes exactly so my t4 is just above the range was 20 now 11, so I'm going to get my bloods done soon. I have hashimotos but the Drs don't seem bothered

jade_s profile image
jade_s in reply to Ndobins

oh wow that's low! good luck, it's a bit of an art, this hormone balancing business LOL!

Ndobins profile image
Ndobins in reply to jade_s

Do u know much about Hashis? I reckon I'll be UA by the time I'm tested :/

jade_s profile image
jade_s in reply to Ndobins

Not suffering from it myself (I'm hypo but no antibodies), but from what I do know it's not really any different than treating just 'plain' hypothyroidism, since that's what it causes. And in addition, going gluten free seems to help a lot of people. I see you've posted on Thyroid UK before - that's a good group to check with.

You may also like...

B12 levels 6 months after loading injections

because all my other test results have been normal. My ferritin, folate and various other things...

Symptoms alive after loading B12 injections.

helping me out till now earlier i had to have b12 level around 15o . But after loading injections...

Finally ! B12 loading doses and 3 monthly injections

been booked in for B12 loading doses and three monthly injections !! I’ve drawn a lot of...

b12 loading injections & dizziness

Has anyone else experienced dizziness since getting the loading dose? I keep feeling like i’m going...

Teenagers symptoms returning 4 weeks after B12 loading injections.

to this showed B12=166ng/L, folate 4.18ug/L and ferritin 14.2ug/l. Prior to this she has had severe...