Decided to self inject.: Was pleased to... - Pernicious Anaemi...

Pernicious Anaemia Society

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Decided to self inject.

9 Replies

Was pleased to get an appointment with Endocrinologist. Hoped to get him/her to see I possibly have combination of hypothyroidism and B12 deficiency. Following day received second letter saying appointment cancelled, return to GP.

So am giving up on NHS and will self inject before the symptoms get worse. The numbness in toes, tingling in fingers has progressed really quickly.

I've looked at Goldpharma. Do I buy the 1ml/1mg injections? A box of 10 looks to around £7. Are there any instructions in the pack?

I've looked at needle packs on Amazon. Am I right in thinking that I use one needle to draw up the liquid, discard that needle and use a second needle to inject ? The first to filter out any glass powder that may have fallen in on breaking the vial.

Thanks for any advice.

9 Replies
fbirder profile image
fbirder

I get my B12 from versandapo.de versandapo.de/article/searc...

I get my syringes, needles and wipes from amazon.uk:

Green needles to draw the solution up into the syringe - amazon.co.uk/Sterile-Single...

Blue needles for the actual injection - amazon.co.uk/Sterile-Single...

2ml syringes - amazon.co.uk/2ML-PLASTIPAK-...

The nurse that showed me how to inject said that the first needle can get blunted by scraping it along the bottom of the vial - which is why a second is used for the jab.

Yes, 1 mg/ml is what most people use. There won't be any instructions in the pack.

It really is a very, very good idea to have the first jab done with a medical professional in attendance. Not only can they show you how to do it properly, but there's a tiny, but non-zero, possibility of an anaphylactic reaction - which can be deadly. If it should happen, then you really want somebody there that knows what to do and has the equipment around to do it.

in reply to fbirder

Thanks for your help.

I really can't see my GP helping in any way but I understand what you mean by the possibility of adverse reaction. As I'm allergic to so many things it would be a wise precaution.

Will order everything and while awaiting delivery I'll think about who I can ask.

Thanks again. I really appreciate the support and help I've found here.

wongy215 profile image
wongy215 in reply to fbirder

Can you pay by paypal for the b12?

deniseinmilden profile image
deniseinmilden in reply to wongy215

Yes.

deniseinmilden profile image
deniseinmilden in reply to fbirder

Same for me.

To keep the B12 working you will very likely need supporting supplements of a broad spectrum multivitamin and mineral supplement plus extra folate, potassium and magnesium, maybe iron.

For more information, including sources of supplies, you could look up my profile by double clicking on my name and see my post "My Experiences".

humanbean profile image
humanbean

If you don't or can't or won't involve your GP in self-injecting, then you could look at tutorials on Youtube. I don't have any particular links to recommend - I don't inject.

Thanks, human bean. I've watched a view YouTube videos and talked to a friend this afternoon. She's a non injecting diabetic but for the last few months she's been part of a medical research program injecting herself regularly. She's going to sit with me for the first one.

I've been taught in the past how to use an epi pen ( kids at school with various allergies and conditions) so I'm fairly confident I can do it ok.

humanbean profile image
humanbean in reply to

Good luck! It will be worth it. :)

wongy215 profile image
wongy215

I'm also thinking about it too,can't be bothered arguing and begging with drs.I'm a nurse so if I can't bring myself to inject my sister is also nurse and my neighbour and workmates so I'll be sorted 😃

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