Luckily my B12 deficiency is getting better, I’m still cheerful, can walk fairly steadily, balance getting there, leg numbness almost gone. As symptoms are still improving I am continuing weekly injections and supplementation in between. Thank goodness I ignored my NHS GP’s ideas of treatment (B12-103 <180-1000 with Neuro. symptoms = 5 loading injections, retest in 12 weeks, (now normal!) retest in 6 mths. and a walking stick for the Neuros.) Yes I did give them a copy of the BCSH Guuidelines.
The next bit is somewhat off topic but I as this forum is my support here goes.
I had an MRI which showed a large Frontal Sinus Mucocele which has to be drained by an operation. in ten days’ time. It was found by the Eye Dept. at the hospital, when I got double vision after a cataract op. I have to have a general anaesthetic. I’m not too bothered about the op. (I had researched it before seeing the consultant so understood what she was talking about) but one worry is that the nitrous oxide for anaesthetic will wipe out my B12. I will tell them and hope they know about the effect it has on B12.
Thank you to the PAS member who told me about an excellent private GP who gives me my injections. Thank you, members of this forum, for all the support, information, references etc. from which I have learnt what was needed. I have learnt a lot since January when I joined PAS. I don’t think I would have survived this op. without your help and the B12 injections.
I will post again if/when, being ancient, I get through this, !!! and will expect applause from everyone (and a corny joke from the king of puns.)
PS - Does nitrous oxide wipe B12 out of the blood (a good time for a retest?) or just inactivate it, so is still in one’s blood messing up tests?