The Pernicious Anaemia Society was alerted by one of the forum members about recent problems here. The former admin volunteer disappeared. I am now the (only) admin. Any problems, send me a message.
Please read (and understand) the following:
This forum is an initiative of the Pernicious Anaemia Society. It is intended to share knowledge, experiences and opinions related to a pernicious anaemia, and everything that comes with it.
Opinions expressed on this HU Forum are the users’ own, not those of The Pernicious Anaemia Society, and should not be considered to be a substitute for medical advice. You should consult a qualified medical practitioner if you have any concerns over managing your own health. Professional medical advice should always be sought before starting or changing any course of medication, therapy or treatment.
This forum is for sharing knowledge and experiences and for support and recognition. Not for anything else.
I have to read up on everything that's been said and reported, so if you did not get an answer yet, please bear with me. It will take a bit of time to get into it all.
Petra , the new admin
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Some of the HU forums operate with volunteer admins - have you thought of asking some of the obviously dedicated members if they would be willing to do that? A lot better than having no-one readily on hand.
I have a Nokia mainly because I like the "simple" windows type interaction I can have with the phone and pc... I don't know how people manage multi accounts as my steam phone is about all I can manage... Plus all those passwords with b12 def would see my b12 depleted in no time... 😊 Glad we have help here today...
No problem... Thank you too.. I think we all appreciate your support and help.. I did report because of the way Clutter was being treated.. I've only ever found her and everyone on here really helpful, and it can't be underestimated the effects of having somewhere and other people that ACTUALLY know what you are going through...
Hi Petra..Sorry to contact you via an old posting, wasn't sure how else to do it. Its a query about an e~mail I received this evening from someone called Hippocampal, it appeared to have been forward by HU?, & began by saying something like ...'my pharmacist told me not to use anything out of date' I think it was referring to a query I had about expiry date on B12 ampoules, but that was weeks ago, & the query was resolved .I didn't click on to the complete e~mail as I cant see why a reply would come to me & not appear on the forum?. Am I right to be cautious?, was this genuine?.
Hi. If you click on my name you can send me messages privately as well. I saw the posting as well, it was an answer on an old post by you. You got a notification by email that someone answered to your post. It's also on the forum, but it was double and I deleted one. The email is sent by HU to notify you. If you click it, you'll see the link to the post. So yes, it's genuine.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
We see how it goes..
New pernicious anaemia diagnosis
What do you think? Advice please new to this.
Very new to all this!
NICE guideline on B12 Deficiency diagnosis and monitoring in over 16s
