Anyone that has read my previous posts will know my haematologist said my symptoms cannot be due to B12 def as the 3 weeks loading dose would have cured all symptoms and my 8 weekly shot will keep on top of it, and my gastro reg said my levels were not low enough to have any symptoms in the first place (despite the symptoms being the trigger for tests that alerted us to b12 def). I have now had numerous blood tests with the neurologist and an MRI and he has said there is wear and tear in my cervical spine (hmmm could be why I keep needing physio for upper back pain) but nothing to suggest anything neurological so he is saying my symptoms are due to insufficient B12 replacement (I was self injecting every other day btw). I have an appointment with the GP on Tuesday as I can't go on with this, the constant fatigue is the worse thing but there is aching muscles, peripheral neuropathy, tingling etc too. The dizziness etc does seem to have resolved. Where do I go from here???????? What do I ask for from the GP?
This is interfering with my studies and my everyday life and I want to at least be able to know what it is. I have just had a week in the lake district, which at one time would have meant hill walking etc (I was a ranger in the peak district at one time) but this was a slow paced break and involved gentle strolls through town, steamer rides across the lakes, sunbathing etc but it has still worn me out. We went with friends but I felt I was often not much fun to be with as I was constantly tired (though I am glad to say our latest night was 22:30 bedtime as we are all getting old ) I am 45 but feel like I am 90.