Having just looked up information in the book, 'Could it be B12?', by Sally Pacholok and Dr. J. Stuart, I came across this - a good reminder perhaps not to be afraid to speak up as well as recruit extra support from the PAS or a close relative/friend when battling for continued injections:
"Many of us are taught (or intuit) that it is not good form to play too active a role, never mind a contentious one. Questions to doctors should be polite and deferential.....if we feel irritated with the doctor's demeanour, we might save our gripes for relatives or friends...."
"Unfortunately, when it comes to B12 deficiency,....politeness can be fatal. In our own practices, we've seen dozens of people who were diagnosed as B12 deficient at some point in their lives but later allowed doctors to discontinue their treatment. Several paid a high price for this lack of assertiveness because they now have permanent neurological damage or dementia. Conversely, we know of patients with B12 deficiency who are alive and well today only because they, or an assertive family member insisted - sometimes in the face of significant resistance - on proper diagnosis and treatment."