The letter from the haematologist has arrived and it is not complex at all so the GP clearly has a low opinion of my intelligence. I can't believe she said I could not have a copy because it is too complex.
It states the advice given is in accordance with guidelines, which recommends pragmatic approach with a review at 3 weeks (they did not review they said 3 weeks of injections and any remaining symptoms are not due to B12d, so made the decision before I had the injections). They said my current levels of 1252 are supraphysiological and therefore the residual symptoms are not due to tissue B12d (are they completely brainless?, this is serum level and will be high!!!!!). They have acknowledged the nitrous oxide at work may well be an issue for me. They said they do not see B12 patients at the haematology clinic because of huge demands on their service from the ever increasing malignant haematological practice.
Not happy because there is nothing complex in the letter and they are completely misinterpreting the word review and have said my high levels mean my symptoms are not due to B12d.
Next step??? Considering cancelling my apt with the GP on March 7 to discuss the letter, putting in an SAR and moving to another practice that has been recommended. I am treating myself but want to know what damage has already been done so want to see a neurologist but my main priority is getting my son's treatment started, as they are refusing to treat him.
Hubby says forget the SAR and maybe get the current GP to refer me to a neurologist as a GP at a new surgery will want a full history before referral. He agrees that a tel consultation about the letter will give me a watered down version of it and may not be beneficial to me. The thing is I want to jump ship, I am sick of my current surgery and another referral from them will mean a longer wait to leave.
Opinions - take hubby's advice or go to new surgery now.