Injection of B 12 stopped: As you live... - Pernicious Anaemi...

Pernicious Anaemia Society

31,918 members23,047 posts

Injection of B 12 stopped

MDHa246 profile image
1 Reply

As you live 8miles from me I think you must attend the largest practice in Wales, as there is only the one practice in the area. Argyle Medical Group.

I was also told to stop the injections after the loading doses and one further one. I have pheripheral neuropathy, autoimmune connective tissue disease with vasculitis.

May initial level was 136ng. I went to see them to discuss the fact that I should be having more injections as I had neurological issues and this was when they said they would retest me. The result was 600 which it would be following the injections and I was told I could not have any further injection.

I was off the B12 for 8months but the rheumatologist put in her letter that I should restart it and stay on it as it would just go down again. Having said that I don't think that even they know that the guidelines are different if there are neuro issues. The pheripheral neuropathy has gone worse.

One problem is that the doctors do not let you express an opinion, only the Dr has any say in your health. A very dangerous way of practicing medicine.

Not sure where you go from here even with private health ins.

Perhaps Martyn Hooper of PAS would know who was knowledgeable in the subject as he lives at Bridgend. I think you would need to go as far as Swansea or Cardiff and not locally. Good luck I would like to hear how you get on. Please post again.

Written by
MDHa246 profile image
MDHa246
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Cariad64 profile image
Cariad64

hi. just got this post. I'm not with Argyle and we have different conditions . I do wish you all the best with what happens next for you ok. I have giant liver hemangioma. not on meds. hope all goes well for you ☺

You may also like...

Injecting Vit B 12

getting every 13 weeks and I was every 8 weeks so I would like to try this myself and is It on...

B 12 injections from abroad

Hi guys, I live in England. Where can I get B 12 injections over the counter in the UK or from...

b 12 pro but no cons

see private doc you have to and over 150quid for injection They also do other tests you don’t want...

B-12 compounded in the USA

reordered and they told me I could only order a one month supply. They can only send me RX for 60...

Stopping b12 injections

been having injections for 6+ years. In my post, I stated that, due to suspension of injections at...