Every day I am waking at 5 am and am awake for abut an hour but then I do doze. When it comes to time to get up I just can't. It takes me 2 hours to persuade myself to get out of bed, this may be because it is the xmas break, so don't need to be up really. Tomorrow I am back at uni and will be getting up at 6:15am and I am a bit concerned whether I will be able to get up. I cannot function at all. Uni are aware I am struggling to stay awake and concentrate in lectures. On 18th January I am back to 12.5 hour shifts (leave home at 6:20am and get home at 9pm). My next jab is booked for 13th January. I have ordered some B12 injections because I cannot wait for my GP to realise I need more than 2 monthly injections. I cannot wait for them to arrive. I am feeling worse by the day.
I have booked to see another GP as the gastro refused to give my an h.pylori test (he said it is not linked to B12D and we all have it and it is not a problem - complete idiot). I am hoping the GP will have some sense and order a test. I am also going to mention an acid level test and the fact the gastro told me to stop taking vit D because he said 48.7nmol/L is fine.
I should not have to be fighting for these things - it is all a necessity and should be automatic when diagnosed with PA. My exhaustion is making fighting hard but I also need to apply myself to my degree, not researching and fighting for my health. I am scared that my studies are going to suffer because of exhaustion and time spent fighting for my health.
At the moment the health professionals are not showing me a duty of care and they are causing harm - that is against our policies as health professionals. Where is the continuous professional development? - the health professionals should all be up to date in PA (especially the gastro). I get myself so worked up and angry over this. I would never treat someone this way